New to Site-need help with Dissociative Disorder

Discussion in 'General Parenting' started by Reen, Jun 6, 2010.

  1. Reen

    Reen Guest

    I have a 10 year old difficult child that is currently hospitalized. She was diagnosed at 7 with
    Generalized Anxiety Disorder (GAD) and a prenatal stroke. She is a wonderful child. A few weeks ago they were saying bipolar, but as she got more aggressive, we realized we needed more help. The hospital has said Dissociative Disorder and not bipolar on top of the anxiety, they have weaned her off Risperidone and Zoloft and are starting Intuniv today. Can't find much on Dissociative Dissorder. Any help anyone can give is greatly appreciated. This is the hardest thing we have ever done and we want to make sure we make some gains.
  2. SomewhereOutThere

    SomewhereOutThere Well-Known Member

    Ok, ok, ok. First of all, welcome to the board, but sorry you have to be here :tongue:

    Secondly, what is the history of your child that would make anybody think she has dissociative disorder? Has she been abused? Also, what type of professional is doing the diagnosing? Seems like her diagnoses are all over the place and nobody is really sure what is going on. Did she get violent on an antidepressant or a stimulant? That's common and often due to the medication.

    Has she ever been assessed by a neuropsychologist?

    Can you tell us more about her. How was her early development? Can she socialize comfortably with her same age peers? Does she make good eye contact? Can she transition from one activity to another? Are there any psychiatric disorders or substance abuse on either side of her genetic family tree? To me, it sounds like her mental health care specialists are not doing a good enough job...are they taking into consideration that her prenatal stroke may be affecting her behavior?

    To help, we will probably need more. I am really confused why they'd give her a stimulant if they feel she has DID, yet I'm also wondering if they know what they are talking about when they say she has DID. What lead them to that diagnosis? Who are "they" who are giving her all these alphabet soup diagnoses??
  3. Reen

    Reen Guest

    Thanks for the help.
    Here are the answers I know.
    She was not abused.
    The bipolar was suggested by a Psychiatrist that does not specialize in peds and was seeing her when we thought just anxiety. He has now said she is too difficult for him and we have names of other local peds psychiatrists. The Dissociative Disorder is inpatient at Rush University medication Center in Chicago. She got to the point of violence on antidepressants for us to take her in, but these episodes have been happening since before medications, they have just gotten more so and she is getting bigger. Since she was little she has always had times where she gets a look in her eyes like she isn't there. They are not always violent.

    Development was quirky and we found out about the stroke at 7 which explained a lot, but not everything.

    She had a complete neuro psychiatric at age 8 at Mayo which gave us Generalized Anxiety Disorder (GAD) and told us to get used to the idea of medications. Therapy alone for a while, but then added medications.

    At 9 she had a conversin disorder that lasted about a week. It was hysterical blindness. Local eye doctor who is also a peds eye surgeon did MRI and steriods thinking swollen optic nerve and did want to give her higher dose without going to hospital. Since we had been to Mayo, we hopped in the car and headed up there. Their Neuro was even thinking real eye problem and then their eye doctor did a test and figured it out. It was so scary to see what the brain can do. She even took visual field tests 2 days apart and they were the same. She was seeing double and would draw letter with her finger perfectly off the line. She would go through 20 letters and get the same ones wrong in the same way time after time.

    She is a little imature for her age, but does alright. She has executive function issues so transitioning is a problem. Eye contact is good.

    When she has what we call trouble, she doesn't remember it after and she doesn't seem like she is there. It can be a variety of emotions. The real problem is when she is aggressive.

    She has been tested for seizures.

    As I told the social worker which made my sister laugh, we have no diagnosed mental health problems, but like any family, we have various issues.

    Doctors are all over on if the hole in her brain contributes to the psychiatric issues or not. We think the rewireing that had to be done in there had to have had an effect. She does amazingly well academically which means the brain did a lot of compensating.

    What we were told was that the intuniv was a blood pressure medication, but can help with these kinds of behaviors.

    Hope this helps. Let me know if you have more questions.
  4. busywend

    busywend Well-Known Member Staff Member

    I was going to ask about seizures - was she seen by a specialist? It is difficult to diagnosis unless she is having one at the time.
  5. TerryJ2

    TerryJ2 Well-Known Member

    Hi Reen, welcome.
    Wow, poor thing. She's got it coming and going. And so have you!
    Others here can help you with-dissociative order. All I know is that regular antidepressants tend to make bipolar worse.
  6. timer lady

    timer lady Queen of Hearts

    Dissociative identity disorder or any dissociative state is an extreme form of anxiety. Many times it's a very extreme form of survival; a place to hide when fearful, being hurt, etc. & is the result of abuse. For others, there is no obvious reason.

    I have 2 children who are &/or have been dissoiative at any given time. kt is diagnosis'd with DID; wm has dissociate components & moments. Having said that both of my children were abused/neglected in bio home.

    What I know is that any of us can/will dissociate at any given time. For our children extreme anger, tantrums, meltdowns (whatever you may call it) frequently is a dissociative moment. Ask your difficult child what she remembers after moments of violence or extreme anger ~ likely she doesn't remember.

    For kt, she has other "identities" that she crawls into when she is feeling threatened or has flash backs. wm, on the other hand, just shuts down.

    There are many sites on DID.

    Both of my children needed medications for their PTSD, bipolar before the trauma & DID could be addressed.

  7. timer lady

    timer lady Queen of Hearts

    I wanted to make a further point ~ when your child is stable medication wise then extreme counseling comes into play. This isn't something that takes a few sessions & is gone. It's weekly at the very least; sometimes many times a week.

    My children, especially kt, had to & is still learning healthier coping skills. She doesn't have to go to her "safe place" as she has a safe place outside of herself.

    Whatever is going on with your child I hope for the best. This diagnosis isn't for the faint of heart & I totally understand your concern & appreciate your dedication.
  8. susiestar

    susiestar Roll With It

    I have no firsthand knowledge of this, but want to welcome you. It has to be very hard to see your much loved child go through all of this.
  9. Reen

    Reen Guest

    Yesterday, they told me that they had never seen a case like hers. She acts like a child with PTSD, but has grown up in a normal loving home. They said there just must be something in her personality that decidid this was a good coping technique. They want to send her home today, but I am talking to the doctor this morning because I don't want to go back to where we were.

    Thanks for the support, it is wonderful.