UG! I am riled up- or whatever...yeesh. I was nervous earlier today about a doctor visit for me....doctor had talked to me and said my liver was not happy cuz of either my illness or my medications, to come in today. I replied to PamelaJ on a post and made something sound so much easier than it really is........then I think I hijacked a thread of Margs......yeesh. Talk about high anxiety! Was already not haveing the best week....not the worst but..... little things. Adjusting to reconciliation with my sibs......after a many year long seperation/estrangement.....even tho I blamed my sister for a lot of the problems, and I blame her for my moms estate being broke----I simply no longer wanted to live with the estrangement, so have been working extra hard at reconciliation--and to my delight, it does seem sibs are also. So it is good, but - not easy. LOL. Rejoined a group I was a founding member of here- Marine Corps League AUx. I left a couple years ago when my mom was so ill and I was so busy with her, and then husband was so ill at same time and then my son poked his eye out. I left the group partly becuz prior to me being SO busy, I could NOT get a fire lit under the co-members to be active and do what our mission statement said....but also becuz I suddenyl was SO busy, and also too partly becuz suddenly it was ME in the shoes of the people we usually would help- yet noone even acknowledged I was in those shoes. Well, I found out it is now all NEW members, LOL------so I rejoined----BUT...little weird things.... so- a little stress. I am haveing a horrible time figureing out how to make sure my easy child has cash euros for her ireland trip- she is under 18, going with school- plus I have never flown, do not know rules etc...... LOL And I am mentally prepping for my sons 4 trips to various docs 5 hours each way, how in heck am I gonna put gas in tank for those trips? ANd how will I feel by the Lane Bryant> etc etc....plus I resent the trips now-----Shriners is not really actively doing anything anymore, the bilateral leg braces did not help after 2 years of 24-7 wear, so they stopped them, and good news is he did not get WORSE without them..so it is just follow up with ortho- follow up with neuro re heterotopia, but neuro NEVER has anything to say about it....and follow up with geneticist who has been waiting for new tests to be developed he wants to run.but they are not yet developed, LOL- just follow up to formally say so.... and a visit to eye surgeon, they cannot fix sons eye.....they only check tomake sure it still has blood flow...and they peek at his good eye....and the other eye doctor sees him a week later to check again to make sure the eye is not shrinking more....and then the OTHER eye doctor sees him a week after that to check tomake sure if/when son wants a prosthesis it is still an option..... Each doctor visit is 5 hours each way....hours spent in clinic.....a sleepover either at a hotel or ronald mcdonald house.....chaos at home becuz I am not home to keep chaos under some semblance of control...... exhaustion for me cuz the whole 5 hours is spent in high tension traffic....and a time of meals catch as I can..and a nite not in MY own bed.