Probably the one good thing we have gotten from the current (2nd) neuro is lamictal. I asked Jess if she thought it was helping. She is at 100 mg/day. She says for the first time EVER her days are not really short and she doesn't have the feeling that she is "missing time". She has fought the missing time for a long time. It is a symptom of the absence seizures. We estimate now that she has gained about 2 hours of awareness per day. I think she will get even more when we get the dose adjusted again. I had not realized how much the keppra wasn't working. I am really resenting all the money we spent on keppra when it was not even a first line medication for this type of seizure. It is sort of like going to the doctor with an infection and getting imitrex. A good medication but NOT one that will treat the problem, so paying for it is a waste. We spent almost 3 YEARS on keppra because the doctor told us that it and topomax are the ONLY options. She cannot tolerate the topomax. Finding out about more options makes me MAD. Esp if I think about all the sprains and strains of her ankles and knees because she falls. If she is walking when a seizure hits she falls. Period. So most of the time at least one knee or ankle is sore and tender. GRRR. The neuro we first saw may be ranked as the "top neuro in the state for peds" according to several reviews but that is simply not true in our case. Either that or he was just using her as a guinea pig for research. He has used her EEG for teaching purposes because he said it was unique and interesting. Did you know that docs can use your test results for research and teaching, and even use blood and tissue samples for research WITHOUT your consent? Once a test is done you have no legal right to stop them from using your results or leftover fluids/tissue/samples for research. Docs and labs make obscene amounts of money from this. ALL they have to do is not use your name. Period. I think many docs fall into this temptation and use us as guinea pigs with-o telling us.