Shari, sending good thoughts.
It helped me to write a list of things I thought my child needed. It helped if I asked "the experts" what they thought my child needed or any suggestions they might have.
I always walked softly, didn't sweat the small stuff and kept a very big stick. Fortunately, I seldom needed it but it was more effective that way.
Everyone deals with this situation differently. Try to have a goal and a plan. Everything else is secondary to difficult child getting services.