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<blockquote data-quote="BestICan" data-source="post: 38956" data-attributes="member: 3413"><p>My son also has seizures (his are sorta like staring episodes, too), and when they were happening several times a day, his behavior was COMPLETELY out of control. Zero impulse control, revved up as if he had severe ADHD, and just...dunno how else to say it...weird sometimes. </p><p></p><p>He still has impulse control issues (and I love him, but he's weird still, too). But when the seizures were frequent it was a whole different level! The first thing I look for when his behavior starts going off the charts is whether he's having seizures. </p><p></p><p>I'm sorry you had to pay so much (with our copay my son's medications are only maybe $10/month) but I wonder if it might be something to look at. If your husband is against the other medications at least seizures are something you can potentially PROVE a need for with an EEG.</p><p></p><p>By the way we recently had a visit to the pediatrician. neuro and she did mention that it's common to wean kids off their seizure medications after 2 years and look for a recurrence of seizures. Sounds like that's maybe what you did? </p><p></p><p>It sounds like your son has a lot of issues and it's hard to figure out what's causing what. I'm there, too, and I know how frustrating it is. My suggestion is just to keep trying, calling different specialists for their points of view, and see if you can get yourself on a new, more hopeful path.</p></blockquote><p></p>
[QUOTE="BestICan, post: 38956, member: 3413"] My son also has seizures (his are sorta like staring episodes, too), and when they were happening several times a day, his behavior was COMPLETELY out of control. Zero impulse control, revved up as if he had severe ADHD, and just...dunno how else to say it...weird sometimes. He still has impulse control issues (and I love him, but he's weird still, too). But when the seizures were frequent it was a whole different level! The first thing I look for when his behavior starts going off the charts is whether he's having seizures. I'm sorry you had to pay so much (with our copay my son's medications are only maybe $10/month) but I wonder if it might be something to look at. If your husband is against the other medications at least seizures are something you can potentially PROVE a need for with an EEG. By the way we recently had a visit to the pediatrician. neuro and she did mention that it's common to wean kids off their seizure medications after 2 years and look for a recurrence of seizures. Sounds like that's maybe what you did? It sounds like your son has a lot of issues and it's hard to figure out what's causing what. I'm there, too, and I know how frustrating it is. My suggestion is just to keep trying, calling different specialists for their points of view, and see if you can get yourself on a new, more hopeful path. [/QUOTE]
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