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really bad night
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<blockquote data-quote="buddy" data-source="post: 579968" data-attributes="member: 12886"><p>Sounds very familiar, sad to say. My son went from underweight to I believe around 200 lbs now a year later. I buy treats rarely. He goes on those eating jags but is eating bags of sweet peppers, celery, apples, pears etc. </p><p></p><p>The rage sounds familiar too. I've been bruised head to toe. </p><p></p><p>My son is very sensitive to medications. His pediatrician decided to check his levels of enzymes needed to metabolize drugs. Turned out to be a good thing. He's missing two common enzymes needed to metabolize many drugs. This means small doses are like overdoses to him</p><p> Kids have died from three small doses (3days) of prozac because it just builds up. </p><p></p><p>To complicate it, some medications cause enzyme reduction</p><p> Prozac does that and if that happened to your son his body may not have built up the enzymes yet (not sure what enzymes are needed for vyvance). </p><p></p><p>And of course side effects alone can be awful, causing psychotic symptoms ....I think our seizure prone kids are more vulnerable to that. </p><p></p><p>Stimulants can lower the seizure threshold so that could be the issue.</p><p></p><p>Whats hard is inpatient seizure units won't take aggressive kids sometimes. But sure would be nice to see whats going on over days with him. It has to be so scary to have those auditory seizures. Q's visual perception is affected and when it was frequent he wanted to die to get rid of it.</p><p></p><p>I have a team of three docs, neuro, psychiatrist, and pediatrician, I ask the pediatrician to take lead in making sure one doctor doesn't neglect info or give medications to interfere with another. They all email and call eachother and I have private cell phones. We are truly blessed.</p><p></p><p>So pediatrician. Is concerned about the weight and yet realistic abt. Need for medications (their clinic specializes in neurobehavioral issues ) neuro really listens and looks deep...but realizes that new conditions are not likely ...rather a complication from what we know is going on.....usually seizures or medication side effects.</p><p></p><p>psychiatric is newer (the others have stuck with us since age 2) but owns her own iop and has five special needs kids of her own. Neuro has a son with autism.</p><p></p><p>Anyway, yes I can relate. On many levels. I hope your neuro will take a breath and slow down. Trust your gut.</p><p></p><p>Q can't do melatonin either. Strangely he does take benadryl daily</p><p></p><p></p><p>Hugs....</p></blockquote><p></p>
[QUOTE="buddy, post: 579968, member: 12886"] Sounds very familiar, sad to say. My son went from underweight to I believe around 200 lbs now a year later. I buy treats rarely. He goes on those eating jags but is eating bags of sweet peppers, celery, apples, pears etc. The rage sounds familiar too. I've been bruised head to toe. My son is very sensitive to medications. His pediatrician decided to check his levels of enzymes needed to metabolize drugs. Turned out to be a good thing. He's missing two common enzymes needed to metabolize many drugs. This means small doses are like overdoses to him Kids have died from three small doses (3days) of prozac because it just builds up. To complicate it, some medications cause enzyme reduction Prozac does that and if that happened to your son his body may not have built up the enzymes yet (not sure what enzymes are needed for vyvance). And of course side effects alone can be awful, causing psychotic symptoms ....I think our seizure prone kids are more vulnerable to that. Stimulants can lower the seizure threshold so that could be the issue. Whats hard is inpatient seizure units won't take aggressive kids sometimes. But sure would be nice to see whats going on over days with him. It has to be so scary to have those auditory seizures. Q's visual perception is affected and when it was frequent he wanted to die to get rid of it. I have a team of three docs, neuro, psychiatrist, and pediatrician, I ask the pediatrician to take lead in making sure one doctor doesn't neglect info or give medications to interfere with another. They all email and call eachother and I have private cell phones. We are truly blessed. So pediatrician. Is concerned about the weight and yet realistic abt. Need for medications (their clinic specializes in neurobehavioral issues ) neuro really listens and looks deep...but realizes that new conditions are not likely ...rather a complication from what we know is going on.....usually seizures or medication side effects. psychiatric is newer (the others have stuck with us since age 2) but owns her own iop and has five special needs kids of her own. Neuro has a son with autism. Anyway, yes I can relate. On many levels. I hope your neuro will take a breath and slow down. Trust your gut. Q can't do melatonin either. Strangely he does take benadryl daily Hugs.... [/QUOTE]
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