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really bad night
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<blockquote data-quote="buddy" data-source="post: 579994" data-attributes="member: 12886"><p>Yeah, I know we are lucky they decide on medication changes together. Neuro and pediatrician even went to a weekend conference together and talked Q the whole time. Kids like ours teach them a lot. None hold back prescribing if needed but they all look for other options first, especially lowering medications a tiny amount (because of the enzyme thing and his general sensitivity to medications).....I will cry rivers if we lose them. It's so scary.</p><p></p><p>psychiatric did research at Mayo and she uses name brand only with Q because theres a legal amount of difference allowed and it can make a huge difference in sensitive people. </p><p></p><p>I don't know about you but I've had to call 911 and ask for an ambulance and police when q is too aggressive. I tell them he has a seizure disorder that makes him that way as a primary thing because it seems they are all more patient with that. I have our addy and his condition listed in the 911 call center so they know there's a child with autism. Our school has a safety plan with me if I don't answer the phone and q doesn't come to the bus 911 is called to check in case I'm knocked out. (by the way, as I'm writing this medications are not kicked in and I'm being called a dirty daxx bxxxx. Over and over, totally stuck in his head. Uggg hate verbal tics)</p><p></p><p>Even though my head understands where this all comes from, my spirit is worn out some days. It is a natural human response to feel hurt over abuse like that but no one knows how to counsel us when it's not a choice yet to have them leave. </p><p></p><p>They'd be killed in a Department of Juvenile Justice system ....no way they can learn social codes for survival, and my son is mixed white, black, Hispanic and wouldn't know about racial issues even. Residential places are set up very behaviorally, earning levels and such....Q has no ability to process in groups or earn things that way. So where would he go anyway? No general lower functioning group homes would keep him if he got aggressive so he'd bounce around. ( so im told by social workers and our in home people who also own and operate residential places)......</p><p></p><p>Still, the reality is, if q ever got so dangerous, my being injured won't help him. How will they feel about themselves if we don't protect them from a lifetime knowing they seriously hurt mom or killed her? I have no answer, just sharing. And of course you have the added burden of protecting kids. If he's so unaware, they're in danger. </p><p></p><p>You said you have good neighbors. Do you have a home where the other kids can go crash on those days? I think a safety plan for them now that soon to be ex is gone might be important. Do you have that? A secret word that is their code to go?</p></blockquote><p></p>
[QUOTE="buddy, post: 579994, member: 12886"] Yeah, I know we are lucky they decide on medication changes together. Neuro and pediatrician even went to a weekend conference together and talked Q the whole time. Kids like ours teach them a lot. None hold back prescribing if needed but they all look for other options first, especially lowering medications a tiny amount (because of the enzyme thing and his general sensitivity to medications).....I will cry rivers if we lose them. It's so scary. psychiatric did research at Mayo and she uses name brand only with Q because theres a legal amount of difference allowed and it can make a huge difference in sensitive people. I don't know about you but I've had to call 911 and ask for an ambulance and police when q is too aggressive. I tell them he has a seizure disorder that makes him that way as a primary thing because it seems they are all more patient with that. I have our addy and his condition listed in the 911 call center so they know there's a child with autism. Our school has a safety plan with me if I don't answer the phone and q doesn't come to the bus 911 is called to check in case I'm knocked out. (by the way, as I'm writing this medications are not kicked in and I'm being called a dirty daxx bxxxx. Over and over, totally stuck in his head. Uggg hate verbal tics) Even though my head understands where this all comes from, my spirit is worn out some days. It is a natural human response to feel hurt over abuse like that but no one knows how to counsel us when it's not a choice yet to have them leave. They'd be killed in a Department of Juvenile Justice system ....no way they can learn social codes for survival, and my son is mixed white, black, Hispanic and wouldn't know about racial issues even. Residential places are set up very behaviorally, earning levels and such....Q has no ability to process in groups or earn things that way. So where would he go anyway? No general lower functioning group homes would keep him if he got aggressive so he'd bounce around. ( so im told by social workers and our in home people who also own and operate residential places)...... Still, the reality is, if q ever got so dangerous, my being injured won't help him. How will they feel about themselves if we don't protect them from a lifetime knowing they seriously hurt mom or killed her? I have no answer, just sharing. And of course you have the added burden of protecting kids. If he's so unaware, they're in danger. You said you have good neighbors. Do you have a home where the other kids can go crash on those days? I think a safety plan for them now that soon to be ex is gone might be important. Do you have that? A secret word that is their code to go? [/QUOTE]
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