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<blockquote data-quote="susiestar" data-source="post: 727097" data-attributes="member: 1233"><p>I am sorry that you are going through all of this. A couple of things come to mind. First of all, I would suggest writing a Parent Report. This is a report that you write that tells everything about your son. You take it to every meeting and appointment. You keep it updated and you give his doctors/whomever whatever information from it or even part of the report that will help them treat your child. Or even the entire report. I found it was one of the most powerful tools I had because it cut out the whole "let's reinvent the wheel" part when switching doctors. I could say that we had already tried this or that and it didn't work, here are the results from doctor A, so let's try something else. The doctor couldn't say "Well, we don't really have those results, so we have to try it and see it fail again before we can move on". I found that having the prinouts of the lab reports in the Parent Report, along with my summary of how the medication worked and any side effects or whatever, really helped. It also helped that I could pull them out at a moment's notice during an appointment. </p><p></p><p>The format for the report was devised by parents who were here before me and it really works. Don't do it in one sitting, and keep updating it.</p><p></p><p>The other thing that I wonder about for your son is if anyone has addressed his sensory issues. Most people on the autistic spectrum have sensory issues. Their brain doesn't process what their senses tell them the way that normal people's brains do. If you have sensory issues, the world is "TOO". Too what? Depends on your sensory issue. Too loud, quiet, booming, shrill, stinky, not stinky enough, cold warm, almost any descriptor you could name, can be an issue for someone with a sensory issue depending on their sensory issue. Often it can feel like the entire world is attacking you and everyone around you looks at you funny because they don't experience the world that way. </p><p></p><p>Your son might have to work incredibly hard to keep it together and not have outbursts at school or in public. By the time he gets home he just cannot cope any longer. Then the family wants him to do homework and chores and family time and he honestly, truly, and quite literally cannot function. I don't know this for sure, but it could be the case. He may need his IEP to say that he has no homework because it is too much of a demand. We did that with my son at one point. I was NOT going to spend my every night dealing with a rage over homework. My son coped all day in school and he didn't need to do anything more at home. It was just more than he was able to cope with at the time. It made a huge difference. We also added help for the sensory issues.</p><p></p><p>You can get help for the sensory issues, if you have not done that. You see an occupational therapist for this. They do an evaluation and then give recommendations as to what will help. It can make a BIG difference.</p></blockquote><p></p>
[QUOTE="susiestar, post: 727097, member: 1233"] I am sorry that you are going through all of this. A couple of things come to mind. First of all, I would suggest writing a Parent Report. This is a report that you write that tells everything about your son. You take it to every meeting and appointment. You keep it updated and you give his doctors/whomever whatever information from it or even part of the report that will help them treat your child. Or even the entire report. I found it was one of the most powerful tools I had because it cut out the whole "let's reinvent the wheel" part when switching doctors. I could say that we had already tried this or that and it didn't work, here are the results from doctor A, so let's try something else. The doctor couldn't say "Well, we don't really have those results, so we have to try it and see it fail again before we can move on". I found that having the prinouts of the lab reports in the Parent Report, along with my summary of how the medication worked and any side effects or whatever, really helped. It also helped that I could pull them out at a moment's notice during an appointment. The format for the report was devised by parents who were here before me and it really works. Don't do it in one sitting, and keep updating it. The other thing that I wonder about for your son is if anyone has addressed his sensory issues. Most people on the autistic spectrum have sensory issues. Their brain doesn't process what their senses tell them the way that normal people's brains do. If you have sensory issues, the world is "TOO". Too what? Depends on your sensory issue. Too loud, quiet, booming, shrill, stinky, not stinky enough, cold warm, almost any descriptor you could name, can be an issue for someone with a sensory issue depending on their sensory issue. Often it can feel like the entire world is attacking you and everyone around you looks at you funny because they don't experience the world that way. Your son might have to work incredibly hard to keep it together and not have outbursts at school or in public. By the time he gets home he just cannot cope any longer. Then the family wants him to do homework and chores and family time and he honestly, truly, and quite literally cannot function. I don't know this for sure, but it could be the case. He may need his IEP to say that he has no homework because it is too much of a demand. We did that with my son at one point. I was NOT going to spend my every night dealing with a rage over homework. My son coped all day in school and he didn't need to do anything more at home. It was just more than he was able to cope with at the time. It made a huge difference. We also added help for the sensory issues. You can get help for the sensory issues, if you have not done that. You see an occupational therapist for this. They do an evaluation and then give recommendations as to what will help. It can make a BIG difference. [/QUOTE]
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