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Seb's diagnosis / rx update
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<blockquote data-quote="Marguerite" data-source="post: 46091" data-attributes="member: 1991"><p>A reaction/no reaction to stims isn't a guarantee of BiPolar (BP). difficult child 1 rebounds badly on ritalin but not on dex. A friend of ours rebounds on dex but not ritalin.</p><p></p><p>difficult child 1 can take antidepressants and does well. difficult child 3 (and I) can't.</p><p></p><p>Drug reactions can happen for all sorts of reasons.</p><p></p><p>And don't worry about heredity - that die is cast. Besides, environment is a HUGE factor, and a big part of today's environment is a much better understanding and management. You are on the alert to it and with your vigilance, I can see a lot more consideration and precaution being taken.</p><p></p><p>The Occupational Therapist (OT) at the school may be able to help with the Sensory Integration Disorder (SID). I would talk to the school about the implications of this, put it in the IEP. But first you have to find out how it specifically impacts his schooling. All I could help you with here is a list of how difficult child 1 & difficult child 3 were affected by this at school. easy child 2/difficult child 2 also has Sensory Integration Disorder (SID) issues but found her own way of handling it at school.</p><p></p><p>See if you can make a list of his sensory issues, overall. Have you had a chance to talk to your younger son's speech therapist about Seb's swallowing issues? If it's Sensory Integration Disorder (SID), this could put it equally with the Occupational Therapist (OT).</p><p></p><p>With food and textures, we didn't push difficult child 3 too hard but we DO make him at least taste new foods, so he doesn't narrow his food choices too much. If the food has a creamy texture (which he hates) we try to find a way to let him taste it without experiencing the texture too much - maybe with another food he knows. In this way he has accepted tartare sauce and mayonnaise.</p><p></p><p>A thought - how is he with dry food? I know your son's food issues are almost the opposite of difficult child 3's - your son likes things creamy because it makes them easier to swallow. Well, my husband has swallowing issues too which he puts down to a dry mouth. He won't eat shortbread, for example, because it's so dry and crumbly. He's much worse than he used to be, he really prefers his food much moister than he used to. Is this a possibility for your difficult child? In which case, there could be a mild medical reason for it - some medications cause a dry mouth, for example. For husband, we just make sure he has a drink of something handy (milk is good) as well as keeping the food moist.</p><p></p><p>The Pervasive Developmental Disorder (PDD) score of 58 - easy child 2/difficult child 2 currently scores about the same. It's been very difficult to assess her because she masks it so well and she IS 20 now, she's compensated a great deal. Her doctor says she's not Aspie because she makes good eye contact, but she only does this with people she knows (like the doctor) - and difficult child 3 also makes good eye contact. It really can be very arbitrary, with specialists. Also, the smarter the kid, the harder it is to pinpoint a diagnosis. For us, we have a personal working hypothetical diagnosis of Asperger's for easy child 2/difficult child 2, because it makes it easier for us to handle her problems (and tantrums, and meltdowns, and panic attacks).</p><p></p><p>If you can, print the sheets each time you do the Pervasive Developmental Disorder (PDD) test for Seb. Any other similar tests - print them out. It can give you a running record of his progress in all those small areas, too. Plus, if in doubt - look at the info on how to answer each question. Sometimes we err on the side of wanting to get a higher score, or wanting the child to score as normal. The guideline keeps it as impartial as possible. It might be a useful tool to help husband understand, too (but use your own judgement there). If husband does the test for difficult child, make sure he confirms his answers with the answering guidelines. It could be an awakening for him, although with a close-to-normal Pervasive Developmental Disorder (PDD) score like this it could encourage his denial. As I said, only you can judge this option.</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 46091, member: 1991"] A reaction/no reaction to stims isn't a guarantee of BiPolar (BP). difficult child 1 rebounds badly on ritalin but not on dex. A friend of ours rebounds on dex but not ritalin. difficult child 1 can take antidepressants and does well. difficult child 3 (and I) can't. Drug reactions can happen for all sorts of reasons. And don't worry about heredity - that die is cast. Besides, environment is a HUGE factor, and a big part of today's environment is a much better understanding and management. You are on the alert to it and with your vigilance, I can see a lot more consideration and precaution being taken. The Occupational Therapist (OT) at the school may be able to help with the Sensory Integration Disorder (SID). I would talk to the school about the implications of this, put it in the IEP. But first you have to find out how it specifically impacts his schooling. All I could help you with here is a list of how difficult child 1 & difficult child 3 were affected by this at school. easy child 2/difficult child 2 also has Sensory Integration Disorder (SID) issues but found her own way of handling it at school. See if you can make a list of his sensory issues, overall. Have you had a chance to talk to your younger son's speech therapist about Seb's swallowing issues? If it's Sensory Integration Disorder (SID), this could put it equally with the Occupational Therapist (OT). With food and textures, we didn't push difficult child 3 too hard but we DO make him at least taste new foods, so he doesn't narrow his food choices too much. If the food has a creamy texture (which he hates) we try to find a way to let him taste it without experiencing the texture too much - maybe with another food he knows. In this way he has accepted tartare sauce and mayonnaise. A thought - how is he with dry food? I know your son's food issues are almost the opposite of difficult child 3's - your son likes things creamy because it makes them easier to swallow. Well, my husband has swallowing issues too which he puts down to a dry mouth. He won't eat shortbread, for example, because it's so dry and crumbly. He's much worse than he used to be, he really prefers his food much moister than he used to. Is this a possibility for your difficult child? In which case, there could be a mild medical reason for it - some medications cause a dry mouth, for example. For husband, we just make sure he has a drink of something handy (milk is good) as well as keeping the food moist. The Pervasive Developmental Disorder (PDD) score of 58 - easy child 2/difficult child 2 currently scores about the same. It's been very difficult to assess her because she masks it so well and she IS 20 now, she's compensated a great deal. Her doctor says she's not Aspie because she makes good eye contact, but she only does this with people she knows (like the doctor) - and difficult child 3 also makes good eye contact. It really can be very arbitrary, with specialists. Also, the smarter the kid, the harder it is to pinpoint a diagnosis. For us, we have a personal working hypothetical diagnosis of Asperger's for easy child 2/difficult child 2, because it makes it easier for us to handle her problems (and tantrums, and meltdowns, and panic attacks). If you can, print the sheets each time you do the Pervasive Developmental Disorder (PDD) test for Seb. Any other similar tests - print them out. It can give you a running record of his progress in all those small areas, too. Plus, if in doubt - look at the info on how to answer each question. Sometimes we err on the side of wanting to get a higher score, or wanting the child to score as normal. The guideline keeps it as impartial as possible. It might be a useful tool to help husband understand, too (but use your own judgement there). If husband does the test for difficult child, make sure he confirms his answers with the answering guidelines. It could be an awakening for him, although with a close-to-normal Pervasive Developmental Disorder (PDD) score like this it could encourage his denial. As I said, only you can judge this option. Marg [/QUOTE]
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