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Strange and awkward
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<blockquote data-quote="Echolette" data-source="post: 623594" data-attributes="member: 17269"><p>Child, this made me laugh...because it is so exactly what my easy child 15 year old son would do! I swear they set us up to irritate them, then they jump on us, all irritated. You were set up! There was absolutely no right answer to that...but it did make me laugh, and laughing is good, so thank you.</p><p></p><p></p><p></p><p>No, the only book I have read of hers is "when things fall apart". I found it a very helpful adjunct to all the books by Thich Nhat Hahn I like to read...I have never found a voice that speaks to me as clearly as does his, but hers is close. I will try Living with Uncertainty too, thank you!</p><p></p><p></p><p></p><p>Bingo! MWM, thank you for that incredibly thoughtful, detailed post. You sound like you have a lot of the same issues as difficult child (NonVerbal Learning Disorder (NVLD), auditory processing too). He does have disability, and I did arrange for him to be in a job readiness program for high functioning autistic people (PPD not otherwise specified, yes), and he went to his junior year in high school at a school for same. He also had IEPs from 4th grade on (spent 5th grade in a school for kids with learning differences that didn't quite match his needs).</p><p></p><p>So unfortunately the issue is his insistance on not taking his medications (the lithium ability combo does wonders for him, and even lithium alone helps a lot and seems to have few side effects for him...he has been on a lot of medications and is very medication sensitive, so I was thrilled with his response to lithium when they started him on it after a brief hospitalization in a state psychiatric hospital last summer.</p><p></p><p>But....I have no rights or control over him. His doctors won't speak to me without his permission, which he doesn't give anymore. He refuses to take his medications. He does not go to therapy, and he lost his caseworkers (which took me almost a year to get for him) by skipping appointments..they have to see him once a month or drop him from their roles. So yes, disabled. Yes he would benefit from help. Yes I would help him IFFFF.....he would take his medications check in with a caseworker and see a therapist at least sometimes. </p><p></p><p>So you are wrong on that one point, but the rest of your post is extremely well taken, and I really appreciate it.</p><p></p><p></p><p></p><p>Yes, I see that with difficult child too. He himself, the person, is lost now, at least when in the system. There is no David there anymore, only patient PDDNOSADDBPDSBD. You know. </p><p></p><p></p><p></p><p>Well he didn't. But that is OK. Sometimes it takes him a few weeks to get where he is going. Sometimes he never gets there. Even last night he prefaced it with "if I can get up early enough" so I knew he was preparing an out.</p><p></p><p>My real worry now is that longer days seem to stimulate manic episodes for him. His twin and I both suffer seriously and notably from seasonal affective disorder, and have to fight off real darkness in the winter (I use full spectrum lights, she uses antidepressants and moved to the southwest)...he doesn't have that so much, but I think the opposite...he has had some impressive flame outs in the spring, so I am hoping he gets himself back on medications before that happens...even he has said he knows that is an issue.</p><p></p><p>Thank you all for reading and for commenting. It is always nice to have your company on this somewhat lonely journey.</p><p></p><p>Echo</p></blockquote><p></p>
[QUOTE="Echolette, post: 623594, member: 17269"] Child, this made me laugh...because it is so exactly what my easy child 15 year old son would do! I swear they set us up to irritate them, then they jump on us, all irritated. You were set up! There was absolutely no right answer to that...but it did make me laugh, and laughing is good, so thank you. No, the only book I have read of hers is "when things fall apart". I found it a very helpful adjunct to all the books by Thich Nhat Hahn I like to read...I have never found a voice that speaks to me as clearly as does his, but hers is close. I will try Living with Uncertainty too, thank you! Bingo! MWM, thank you for that incredibly thoughtful, detailed post. You sound like you have a lot of the same issues as difficult child (NonVerbal Learning Disorder (NVLD), auditory processing too). He does have disability, and I did arrange for him to be in a job readiness program for high functioning autistic people (PPD not otherwise specified, yes), and he went to his junior year in high school at a school for same. He also had IEPs from 4th grade on (spent 5th grade in a school for kids with learning differences that didn't quite match his needs). So unfortunately the issue is his insistance on not taking his medications (the lithium ability combo does wonders for him, and even lithium alone helps a lot and seems to have few side effects for him...he has been on a lot of medications and is very medication sensitive, so I was thrilled with his response to lithium when they started him on it after a brief hospitalization in a state psychiatric hospital last summer. But....I have no rights or control over him. His doctors won't speak to me without his permission, which he doesn't give anymore. He refuses to take his medications. He does not go to therapy, and he lost his caseworkers (which took me almost a year to get for him) by skipping appointments..they have to see him once a month or drop him from their roles. So yes, disabled. Yes he would benefit from help. Yes I would help him IFFFF.....he would take his medications check in with a caseworker and see a therapist at least sometimes. So you are wrong on that one point, but the rest of your post is extremely well taken, and I really appreciate it. Yes, I see that with difficult child too. He himself, the person, is lost now, at least when in the system. There is no David there anymore, only patient PDDNOSADDBPDSBD. You know. Well he didn't. But that is OK. Sometimes it takes him a few weeks to get where he is going. Sometimes he never gets there. Even last night he prefaced it with "if I can get up early enough" so I knew he was preparing an out. My real worry now is that longer days seem to stimulate manic episodes for him. His twin and I both suffer seriously and notably from seasonal affective disorder, and have to fight off real darkness in the winter (I use full spectrum lights, she uses antidepressants and moved to the southwest)...he doesn't have that so much, but I think the opposite...he has had some impressive flame outs in the spring, so I am hoping he gets himself back on medications before that happens...even he has said he knows that is an issue. Thank you all for reading and for commenting. It is always nice to have your company on this somewhat lonely journey. Echo [/QUOTE]
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