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<blockquote data-quote="Sheila" data-source="post: 6960" data-attributes="member: 23"><p>109th Congress</p><p>Public Laws | Pending Legislation</p><p></p><p></p><p>Autism</p><p></p><p>S. 843, H.R. 2421, H.R. 5940</p><p>Background</p><p>Autism is a biologically based neurological disorder that causes severe difficulties with communication, language skills, and social interaction. Nearly 1 in 250 children born each day will be diagnosed with autism or an autism spectrum disorder.</p><p></p><p>In 1997, at the request of Congress, the National Institutes of Health (NIH) formed the Autism Coordinating Committee (NIH/ACC) to enhance the quality, pace, and coordination of NIH efforts to find a cure for autism. Since then, NIH/ACC has been instrumental in promoting research to understand the causes of and find a cure for autism. NIH/ACC consists of five NIH Institutes: the National Institute of Mental Health (NIMH), National Institute of Child Health and Human Development, National Institute of Neurological Disorders and Stroke, National Institute on Deafness and Other Communication Disorders, and National Institute of Environmental Health Sciences.</p><p></p><p>During the 106th Congress, the Childrens Health Act of 2000 was signed into law as P.L. 106-310. The Childrens Health Act mandated the establishment of an autism research network consisting of at least five Centers of Excellence in autism research. In response to this mandate, the five Institutes that make up NIH/ACC have implemented the Studies to Advance Autism Research and Treatment network program. These Centers of Excellence conduct basic and clinical research into the cause, diagnosis and early detection, prevention, control, and treatment of autism, including research in the fields of neurobiology, genetics, and psychopharmacology. The Childrens Health Act also mandated the establishment of an Interagency Autism Coordinating Committee (IACC) to coordinate autism research and other efforts within the U.S. Department of Health and Human Services (DHHS); NIMH was designated as the lead Institute for this activity.</p><p></p><p>Provisions of the Legislation/Impact on NIH</p><p>S. 843, the Combating Autism Act of 2006, as amended and passed by the Senate, would:</p><p></p><p>Require the Director of NIH to develop and implement an annual strategic plan for research related to autism spectrum disorders. In the development of the plan, the Director would be required to take into consideration the recommendations of the IACC. In addition, the Director would be required to submit an annual report to Congress that includes the strategic plan and a description of the expenditures of NIH research activities related to autism spectrum disorders in the previous fiscal year.</p><p>Reauthorize the Centers of Excellence program by expanding the list of areas in which the Centers must conduct research and requiring the establishment of Centers of Excellence in Environmental Health and Autism. The bill would allow these programs to be consolidated if consolidation would improve program efficiencies and outcomes.</p><p>Reauthorize the IACC, increase its membership to allow representatives of leading autism research and service organizations and individuals with autism and other developmental disorders to become members, and expand its responsibilities to include making recommendations to the Director of NIH in the development of the NIH strategic plan for autism.</p><p>Require the Secretary of HHS to establish and provide funding for the collection, storage, coordination, and public availability of data generated from public and private autism research partnerships. It would also establish a program under which tissue samples, genetic material, and biological materials would be available for research.</p><p>H.R. 2421, the Combating Autism Act, would increase research, screening, intervention, and education related to autism by:</p><p></p><p>Requiring the Secretary of Health and Human Services (HHS) to establish an IACC to coordinate all efforts within DHHS concerning autism</p><p>Requiring an annual report to Congress that would include autism research funding amounts for each Institute and provide a progress report on the funding recommendations in the Autism Research Roadmap and Matrix of the IACC</p><p>H.R. 5940, the Comprehensive Comparative Study of Vaccinated and Unvaccinated Populations Act of 2006, would require NIH to conduct a comprehensive study to 1) compare health outcomes, including risk of autism, in vaccinated and unvaccinated populations and 2) determine whether vaccines or vaccine components play a role in the development of autism spectrum disorders or other neurological conditions.</p><p></p><p>Status and Outlook</p><p>S. 843 was introduced by Senators Rick Santorum (R-PA) and Christopher J. Dodd (D-CT) on April 19, 2005, and was referred to the Senate Committee on Health, Education, Labor and Pensions (HELP). On July 19, 2006, the HELP Committee by voice vote reported out S. 843, as amended by the Committee with a Committee substitute bill, favorably to the full Senate. On August 3, the Senate passed S. 843, as amended by the Senate, by unanimous consent.</p><p></p><p>H.R. 2421 was introduced by Representatives Mary Bono (R-CA) and Diana L. DeGette (D-CO) on May 18, 2005, and was referred to the House Committee on Energy and Commerce. No further action has occurred on this legislation.</p><p></p><p>H.R. 5940 was introduced by Representative Carolyn Maloney (D-NY) on July 27, 2006, and was referred to the House Committee on Energy and Commerce. No further action has occurred on this legislation.</p></blockquote><p></p>
[QUOTE="Sheila, post: 6960, member: 23"] 109th Congress Public Laws | Pending Legislation Autism S. 843, H.R. 2421, H.R. 5940 Background Autism is a biologically based neurological disorder that causes severe difficulties with communication, language skills, and social interaction. Nearly 1 in 250 children born each day will be diagnosed with autism or an autism spectrum disorder. In 1997, at the request of Congress, the National Institutes of Health (NIH) formed the Autism Coordinating Committee (NIH/ACC) to enhance the quality, pace, and coordination of NIH efforts to find a cure for autism. Since then, NIH/ACC has been instrumental in promoting research to understand the causes of and find a cure for autism. NIH/ACC consists of five NIH Institutes: the National Institute of Mental Health (NIMH), National Institute of Child Health and Human Development, National Institute of Neurological Disorders and Stroke, National Institute on Deafness and Other Communication Disorders, and National Institute of Environmental Health Sciences. During the 106th Congress, the Childrens Health Act of 2000 was signed into law as P.L. 106-310. The Childrens Health Act mandated the establishment of an autism research network consisting of at least five Centers of Excellence in autism research. In response to this mandate, the five Institutes that make up NIH/ACC have implemented the Studies to Advance Autism Research and Treatment network program. These Centers of Excellence conduct basic and clinical research into the cause, diagnosis and early detection, prevention, control, and treatment of autism, including research in the fields of neurobiology, genetics, and psychopharmacology. The Childrens Health Act also mandated the establishment of an Interagency Autism Coordinating Committee (IACC) to coordinate autism research and other efforts within the U.S. Department of Health and Human Services (DHHS); NIMH was designated as the lead Institute for this activity. Provisions of the Legislation/Impact on NIH S. 843, the Combating Autism Act of 2006, as amended and passed by the Senate, would: Require the Director of NIH to develop and implement an annual strategic plan for research related to autism spectrum disorders. In the development of the plan, the Director would be required to take into consideration the recommendations of the IACC. In addition, the Director would be required to submit an annual report to Congress that includes the strategic plan and a description of the expenditures of NIH research activities related to autism spectrum disorders in the previous fiscal year. Reauthorize the Centers of Excellence program by expanding the list of areas in which the Centers must conduct research and requiring the establishment of Centers of Excellence in Environmental Health and Autism. The bill would allow these programs to be consolidated if consolidation would improve program efficiencies and outcomes. Reauthorize the IACC, increase its membership to allow representatives of leading autism research and service organizations and individuals with autism and other developmental disorders to become members, and expand its responsibilities to include making recommendations to the Director of NIH in the development of the NIH strategic plan for autism. Require the Secretary of HHS to establish and provide funding for the collection, storage, coordination, and public availability of data generated from public and private autism research partnerships. It would also establish a program under which tissue samples, genetic material, and biological materials would be available for research. H.R. 2421, the Combating Autism Act, would increase research, screening, intervention, and education related to autism by: Requiring the Secretary of Health and Human Services (HHS) to establish an IACC to coordinate all efforts within DHHS concerning autism Requiring an annual report to Congress that would include autism research funding amounts for each Institute and provide a progress report on the funding recommendations in the Autism Research Roadmap and Matrix of the IACC H.R. 5940, the Comprehensive Comparative Study of Vaccinated and Unvaccinated Populations Act of 2006, would require NIH to conduct a comprehensive study to 1) compare health outcomes, including risk of autism, in vaccinated and unvaccinated populations and 2) determine whether vaccines or vaccine components play a role in the development of autism spectrum disorders or other neurological conditions. Status and Outlook S. 843 was introduced by Senators Rick Santorum (R-PA) and Christopher J. Dodd (D-CT) on April 19, 2005, and was referred to the Senate Committee on Health, Education, Labor and Pensions (HELP). On July 19, 2006, the HELP Committee by voice vote reported out S. 843, as amended by the Committee with a Committee substitute bill, favorably to the full Senate. On August 3, the Senate passed S. 843, as amended by the Senate, by unanimous consent. H.R. 2421 was introduced by Representatives Mary Bono (R-CA) and Diana L. DeGette (D-CO) on May 18, 2005, and was referred to the House Committee on Energy and Commerce. No further action has occurred on this legislation. H.R. 5940 was introduced by Representative Carolyn Maloney (D-NY) on July 27, 2006, and was referred to the House Committee on Energy and Commerce. No further action has occurred on this legislation. [/QUOTE]
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