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Studying Autism Isnt Enough
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<blockquote data-quote="OTE" data-source="post: 6963"><p>I think any new money for research is promising. I think the commentary is right except that I have always argued, and employed with my own child, the idea that parents can be therapy aides as well. I just read Emileislosts's post on the advice that the psychiatrist gave her. While I agree with the technical content therein most of us with Pervasive Developmental Disorder (PDD) kids who have been in therapy could make up a similar list for Pervasive Developmental Disorder (PDD) kids. And many of us have taken it further. I, for one, have been very lucky having lived in NJ when mine was very young. Mine was in an autism school that cost my SD over $40,000/yr which they happily paid. But I take the point that in many, if not most, areas of the country that isn't available. I spent many, many hours both in the classroom and in his one on one therapy sessions outside of the classroom. I was blessed with an opportunity to spend 4 or 5 days in full time classroom training with an expert. in my humble opinion those blessings came to me not only by the grace of God but by my persistence is searching for help for my child. I wish that more parents felt empowered, that more understood that they are the primary therapists given the amount of time they spend with their children. That the time they spend learning about Pervasive Developmental Disorder (PDD) and therapy, and working with their child, is the most predictive indicator of successful outcome for the child (in many professional opinions). How sad that the "profesionals" who wrote this failed to include the idea that parental education and training is an important, if not THE critical, component in a child's later ability to function. How sad that the "professionals" here (who primarily are not Pervasive Developmental Disorder (PDD) experts anyway) are pushing on parents the notion that a diagnosis of Pervasive Developmental Disorder (PDD) is the death of hope for their child, that the outcome cannot be changed by parents but only by professional treatment.</p></blockquote><p></p>
[QUOTE="OTE, post: 6963"] I think any new money for research is promising. I think the commentary is right except that I have always argued, and employed with my own child, the idea that parents can be therapy aides as well. I just read Emileislosts's post on the advice that the psychiatrist gave her. While I agree with the technical content therein most of us with Pervasive Developmental Disorder (PDD) kids who have been in therapy could make up a similar list for Pervasive Developmental Disorder (PDD) kids. And many of us have taken it further. I, for one, have been very lucky having lived in NJ when mine was very young. Mine was in an autism school that cost my SD over $40,000/yr which they happily paid. But I take the point that in many, if not most, areas of the country that isn't available. I spent many, many hours both in the classroom and in his one on one therapy sessions outside of the classroom. I was blessed with an opportunity to spend 4 or 5 days in full time classroom training with an expert. in my humble opinion those blessings came to me not only by the grace of God but by my persistence is searching for help for my child. I wish that more parents felt empowered, that more understood that they are the primary therapists given the amount of time they spend with their children. That the time they spend learning about Pervasive Developmental Disorder (PDD) and therapy, and working with their child, is the most predictive indicator of successful outcome for the child (in many professional opinions). How sad that the "profesionals" who wrote this failed to include the idea that parental education and training is an important, if not THE critical, component in a child's later ability to function. How sad that the "professionals" here (who primarily are not Pervasive Developmental Disorder (PDD) experts anyway) are pushing on parents the notion that a diagnosis of Pervasive Developmental Disorder (PDD) is the death of hope for their child, that the outcome cannot be changed by parents but only by professional treatment. [/QUOTE]
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