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<blockquote data-quote="Hound dog" data-source="post: 21332" data-attributes="member: 84"><p>Welcome.</p><p></p><p>You definately have alot to think about. But what they suspect, may not be the case, or it may not be as serious as they may think. (keeping fingers crossed it isn't)</p><p></p><p>I had to give myself some time to answer your post. I have end stage renal disease. And I don't really talk about with much with other people.</p><p></p><p>I've lived with kidney disease most of my adult life. And although I received a terminal diagnosis, I just don't think I ever really went as far as to think of how it would affect my parenting. (weird huh?) I guess I was too caught up in the day to day.</p><p></p><p>But the first thing I did was make sure I had plenty of support in place. I live several states away from my family. So I couldn't just include family in my support system. Luckily I had friends who could step up and help til family could arrive and take over the situation if necessary.</p><p></p><p>Knowing I had someone I could call and say, hey you know I'm having a really horrible time coping today, could you come and take the kids to give me a short break? Helped alot. I didn't get it too often. Luckily I had husband to pick up the slack alot during some of the roughest times.</p><p></p><p>All I can say is that for me not looking too far into the future helped. I have a vivid imagination. If I let myself worry, I could have myself in a panic in short order. So I pretty much took things as they came. The support system let me do that.</p><p></p><p>And I was lucky that for the most part, if things were really bad my kids, yep even difficult children, would try extra hard to be on their best behavior and to help too. Now my T, being autistic didn't always "get" what was going on. I swear sometimes it seemed like the worse I felt the worse he acted. Then my Mom would step in and take him home with her.</p><p></p><p>Overall, I think we've managed as well as any family would. But I know I couldn't have done it without a family/friend support system.</p><p></p><p>Saying a prayer that whatever they find is not serious and very treatable.</p><p></p><p>(((((hugs)))))</p></blockquote><p></p>
[QUOTE="Hound dog, post: 21332, member: 84"] Welcome. You definately have alot to think about. But what they suspect, may not be the case, or it may not be as serious as they may think. (keeping fingers crossed it isn't) I had to give myself some time to answer your post. I have end stage renal disease. And I don't really talk about with much with other people. I've lived with kidney disease most of my adult life. And although I received a terminal diagnosis, I just don't think I ever really went as far as to think of how it would affect my parenting. (weird huh?) I guess I was too caught up in the day to day. But the first thing I did was make sure I had plenty of support in place. I live several states away from my family. So I couldn't just include family in my support system. Luckily I had friends who could step up and help til family could arrive and take over the situation if necessary. Knowing I had someone I could call and say, hey you know I'm having a really horrible time coping today, could you come and take the kids to give me a short break? Helped alot. I didn't get it too often. Luckily I had husband to pick up the slack alot during some of the roughest times. All I can say is that for me not looking too far into the future helped. I have a vivid imagination. If I let myself worry, I could have myself in a panic in short order. So I pretty much took things as they came. The support system let me do that. And I was lucky that for the most part, if things were really bad my kids, yep even difficult children, would try extra hard to be on their best behavior and to help too. Now my T, being autistic didn't always "get" what was going on. I swear sometimes it seemed like the worse I felt the worse he acted. Then my Mom would step in and take him home with her. Overall, I think we've managed as well as any family would. But I know I couldn't have done it without a family/friend support system. Saying a prayer that whatever they find is not serious and very treatable. (((((hugs))))) [/QUOTE]
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