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<blockquote data-quote="Hound dog" data-source="post: 72036" data-attributes="member: 84"><p>Your post brought tears to my eyes. In it I can recognize the frustration and panic I was at right before Travis began getting his dxes. He was 12, and I had been trying for those entire 12 yrs.</p><p></p><p>The only advice I can give you is what I'd do in the same situation. I'd call up the children's hospital nearest you and get referrals for pediatrician docs and neurologist and neuropsychs. </p><p></p><p>If you just HAVE to have a refferal to go to a specialist, then you need a new pediatrician doctor. One that will LISTEN to the information you are giving him. If that pediatrician doctor doesn't listen, then find another, and so on til you find one that DOES.</p><p></p><p>Now if a referral isn't absolutely necessary for insur. Then call your local children's hospital, ask for the Neurology Clinic (hopefully they have one) and schedule an appointment asap. </p><p></p><p>Finally, DON'T GIVE UP. Someone, somewhere will be able to find the answers.</p><p></p><p>I'll give you the truth, I went thru too many docs to list, and 3 children's hosps before we finally got all the dxes for Travis.</p><p>And when we met his last neurologist I asked the man if I could kiss his feet. It took him less than an hour to diagnosis the boy. Why? Because it was his area of expertise. He happened to also teach neurology at the local medication school, and specialized in tourettes and autistic spectrum disorders.</p><p></p><p>I don't know whether what you're seeing with your little girl is purely medical, mental, or a combination of both. But you're her only advocate right now, and she needs you to hold it together til you can find the right docs to find the answers. You can do this.</p><p></p><p>Keeping you and difficult child in my thoughts and prayers. Please keep us updated.</p><p></p><p>((((hugs))))</p></blockquote><p></p>
[QUOTE="Hound dog, post: 72036, member: 84"] Your post brought tears to my eyes. In it I can recognize the frustration and panic I was at right before Travis began getting his dxes. He was 12, and I had been trying for those entire 12 yrs. The only advice I can give you is what I'd do in the same situation. I'd call up the children's hospital nearest you and get referrals for pediatrician docs and neurologist and neuropsychs. If you just HAVE to have a refferal to go to a specialist, then you need a new pediatrician doctor. One that will LISTEN to the information you are giving him. If that pediatrician doctor doesn't listen, then find another, and so on til you find one that DOES. Now if a referral isn't absolutely necessary for insur. Then call your local children's hospital, ask for the Neurology Clinic (hopefully they have one) and schedule an appointment asap. Finally, DON'T GIVE UP. Someone, somewhere will be able to find the answers. I'll give you the truth, I went thru too many docs to list, and 3 children's hosps before we finally got all the dxes for Travis. And when we met his last neurologist I asked the man if I could kiss his feet. It took him less than an hour to diagnosis the boy. Why? Because it was his area of expertise. He happened to also teach neurology at the local medication school, and specialized in tourettes and autistic spectrum disorders. I don't know whether what you're seeing with your little girl is purely medical, mental, or a combination of both. But you're her only advocate right now, and she needs you to hold it together til you can find the right docs to find the answers. You can do this. Keeping you and difficult child in my thoughts and prayers. Please keep us updated. ((((hugs)))) [/QUOTE]
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