allhaileris
Crumbling Family Rock
I called our regional center to get an appointment for a complete evaluation for Eris for Autism Spectrum Disorders (ASD)-Pervasive Developmental Disorder (PDD) based off of our observances, new issues in school, and feedback from various forum parents on this and another board that she fits many of the signs. So right now I'm waiting for the call back to make the appointment, which will be 4+ months away. There are no developmental pediatricians in our county, but I'll look for somebody further out once we get this done.
On Monday we went in for a pre-meeting for her IEP review. It was to fill out forms, give a quick rundown of what our feelings are on where she's at. The school psycologist said he didn't think she has autism, but he agreed she has tendencies and that she's both motor skilled and developmentally delayed.
I was talking online to another mom who has a son with autism (high functioning) and she said she's heard most of the info they use is stuff they get from the parent and that the diagnosis almost always comes from that info. I said most people would never even think Eris has an issue unless they're around her, and unless they're around a ton, they don't see the autism traits. She said it was the same for her son, he's congintivaly fine, and to most people he seems normal.
I'm all for her being better than I fear, but I also fear she really does have more issues than they think and she'll fall behind in school more and more each year because nobody but us sees these issues.
I'm wondering how often it is that the parents really have figured out what is going on way before the docs (especially with the internet around now, not like 20 years ago)? How often do they come out with a diagnosis (that's correct) that we as parents don't expect at all?
On Monday we went in for a pre-meeting for her IEP review. It was to fill out forms, give a quick rundown of what our feelings are on where she's at. The school psycologist said he didn't think she has autism, but he agreed she has tendencies and that she's both motor skilled and developmentally delayed.
I was talking online to another mom who has a son with autism (high functioning) and she said she's heard most of the info they use is stuff they get from the parent and that the diagnosis almost always comes from that info. I said most people would never even think Eris has an issue unless they're around her, and unless they're around a ton, they don't see the autism traits. She said it was the same for her son, he's congintivaly fine, and to most people he seems normal.
I'm all for her being better than I fear, but I also fear she really does have more issues than they think and she'll fall behind in school more and more each year because nobody but us sees these issues.
I'm wondering how often it is that the parents really have figured out what is going on way before the docs (especially with the internet around now, not like 20 years ago)? How often do they come out with a diagnosis (that's correct) that we as parents don't expect at all?