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Wilson's Disease???
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<blockquote data-quote="Andrea Danielle" data-source="post: 42599" data-attributes="member: 2357"><p>Hi everyone,</p><p></p><p>I have just come from the BiPolar (BP) specialist apt. where we were told that our difficult child might have Wilson's Disease, a really rare disease. He suspects this because of the test results on blood work which he had us do twice to be sure. Here is the description:</p><p></p><p>"Wilson's disease causes the body to retain copper. The liver of a person who has Wilson's disease does not release copper into bile as it should. Bile is a liquid produced by the liver that helps with digestion. As the intestines absorb copper from food, the copper builds up in the liver and injures liver tissue. Eventually, the damage causes the liver to release the copper directly into the bloodstream, which carries the copper throughout the body. The copper buildup leads to damage in the kidneys, <strong>brain</strong>, and eyes. If not treated, Wilson's disease can cause severe brain damage, liver failure, and death."</p><p></p><p>He was diagnosed 6 months ago with Tourette's Syndrome and Early Onset Bi-Polar (EOBP) and those diagnoses sure fit him. Now, when I read the symptoms of Wilson's Disease I wonder if this is what it is. He has a lot of the symptoms: yellowish skin (last year), mood swings, involuntary movements (tics), migraines, depression, neuroses, personality changes, psychosis.</p><p></p><p>He will be going to see a specialist soon I hope. Now I am so freaked out about this. It is treatable with medications but I just want to know soon so that he doesn't have irreparable damage and I want to get him off Risperdal as this can damage his organs too</p><p></p><p>Has anyone else heard of this disease?</p><p></p><p>I am trying hard not to freak out until we know for sure....</p><p></p><p>Andrea</p></blockquote><p></p>
[QUOTE="Andrea Danielle, post: 42599, member: 2357"] Hi everyone, I have just come from the BiPolar (BP) specialist apt. where we were told that our difficult child might have Wilson's Disease, a really rare disease. He suspects this because of the test results on blood work which he had us do twice to be sure. Here is the description: "Wilson's disease causes the body to retain copper. The liver of a person who has Wilson's disease does not release copper into bile as it should. Bile is a liquid produced by the liver that helps with digestion. As the intestines absorb copper from food, the copper builds up in the liver and injures liver tissue. Eventually, the damage causes the liver to release the copper directly into the bloodstream, which carries the copper throughout the body. The copper buildup leads to damage in the kidneys, [B]brain[/B], and eyes. If not treated, Wilson's disease can cause severe brain damage, liver failure, and death." He was diagnosed 6 months ago with Tourette's Syndrome and Early Onset Bi-Polar (EOBP) and those diagnoses sure fit him. Now, when I read the symptoms of Wilson's Disease I wonder if this is what it is. He has a lot of the symptoms: yellowish skin (last year), mood swings, involuntary movements (tics), migraines, depression, neuroses, personality changes, psychosis. He will be going to see a specialist soon I hope. Now I am so freaked out about this. It is treatable with medications but I just want to know soon so that he doesn't have irreparable damage and I want to get him off Risperdal as this can damage his organs too Has anyone else heard of this disease? I am trying hard not to freak out until we know for sure.... Andrea [/QUOTE]
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