Worried

[babyblue31]

I made my appointment. with the specialist yesterday, and I am scared to death. I keep thinking about what may go wrong. I am the only parnet that my son as left. This my brain were talking about, and so much can go wrong. I don't know what to do.....

I feel helpless and I hate that feeling.. What happens if I need surgery.. I don't have family down here to help with my son.. I know my dad would probly come down, but my biggest fear is what if something goes really wrong.

I know it may seem like I'm looking for pitty, and thats the farlist from the truth. I would give anything for this not to be happening. I am just down on myself right now. And through all of whats going on with me the only thing that is on my mind is my son!!!! I have to be here for him...

 

[Ropefree]

babyblue31: Having your father with you in a time like this is the best choice. What if the worst outcome? It is a sencible question and one that you will have comfort knowing that worst comes to worst the child you love will be cared for and loved.

Have two plans, or three: the best, the worst, and one for good measure. Or more. Even though it seems completely dire possibly the fact is you do have options and choices and those matter very much. when you do need to undergo a surgical intervention, or take a medication that may have a terrible effect that fact that you place your trust with your mind settled that you have prepared to the best of your ability is what can be done.

Maybe do enter your son in some type of play or like group. something you can do with him and when your father is with you they can do. Then your son will have some other things around which to have continuity in a time when his main love, Mom, is getting healed up.

Good luck.

 

[DammitJanet]

Good lord almighty...I just read your other thread. A brain bleed that went undxd and unreported to you for almost a year is absurd. I would be livid. I happen to like my brain, have a pretty good relationship with it even though it is injured and not working on all cylinders right now, and I would be so upset.

I am pretty sure that it cant be as bad as we are thinking or they would have called you in back then. Surely?!?!!!

 

[Hound dog]

bb

OMG I just read your other post too! I'm so sorry this has got to be terribly scary for you.

First of all........my though is........if this bleed was found in may.....almost a year ago and it's small......maybe it won't prove to be an immediate problem that can't be corrected. Although if there are problems from this bleed you need to find a good lawyer asap.

I wish I could say I'm surprised you weren't told about it. But I'm not. Odds are doctor told staff to call you and have you come in.....and someone dropped the ball. Happens alot nowdays.

Now......why the bone scan when you have a brain bleed?? Sorry, maybe it should be obvious to me......and it might on another day, but today my brain has taken a vacation. lol

Make a plan regarding your son. No one wants to think of their own mortality. But even if this turns out to be nothing but a huge scare, it has shown you that you need to have plans in place for someone to step in and care for your child if the need arises.

No one thinks you're looking for a pity party. You have every reason to be scared.

Saying prayers and sending all the good thoughts I can muster up.

Hugs

 

[BusynMember]

I want to offer a little comfort about brain surgery. It's not as dangerous as it used to be--honest! My mother had a brain tumor as big as a baseball. She had surgery and four days later they released her. Except for minor memory lapses, she had many good years before she passed of something unrelated (old age mostly). She was disoriented for about 24 hrs. after the surgery, but basically all went well. And she was 68 years old! (((Hugs)))

 

[TerryJ2]

Babyblue31,
Many hugs.
I think it's a great idea to have your dad fly down if you have surgery.
It's also a good idea to have friends or church members schedule meals and play times for your son.
Make sure that every moment is accounted for, as though you would be working in your house, cooking, doing laundry, doling out medication, making appts. It may seem embarrassing to have people come in and do this for you, but this way, you can relax and heal and be sure your son is well taken care of, and you don't have to rush or fret.
That is, assuming you need surgery.
So in the meantime, I'm sending boatloads of healthy, strong wishes that you are in a holding pattern with-your brain, and you won't need any surgery.

I would also be looking for a lawyer. That is, if you haven't already called one.

 

[Suz]

BB, I'm echoing Terry. Please read her post again and pretend I wrote it...especially about the lawyer.

I don't blame you one bit for being terrified. I dare say there isn't any one of us who wouldn't feel the same way. I'm so sorry for your fear. Big hugs to you.

Suz

 

[gcvmom]

Brain bleeds can be anywhere from catastrophic to negligible, believe it or not. You need to know just how extensive this bleed is before you start to panic. You certainly would have had some kind of symptoms if the bleed had been of any significant size.

husband had a "bleed" in what's called a cavernous hemangioma. It's a cluster of leaky capillaries. His was missed on an MRI, too. It wasn't until five years later that somebody found it when I dragged his butt to a neurologist to find out what was causing his symptoms (turns out they were an unusual type of seizures).

At any rate, try not to worry too much (I know, easy for me to say) until you know what you are up against. Get as much information as you can and then read as much as you can about whatever they tell you is going on. That will give you some sense of control over the situation and you will be able to make the best decision for your care.

 

[hearts and roses]

I'm so sorry for your fear (rightfully so). I also liked Terry's post and agree.

I will be praying for you~

Hugs