shellyd67
Active Member
As some of you already know, easy child has been diagnosed with a disease of her hip called Ideopathic Chondrolysis.
It is very rare and in alot of cases prognosis is not very good.
I am worried sick. I have tried to research this condition and speak with Dr's, Physical Therapists and anyone who will lend an ear. Everyone has the same response.
This is rare and unexplainable, we know very little about this condition.
The Ortho Specialist who is treating her informed us that 33% of kids make a full recovery, 33% stay the same and 33% get worse.
I need to know what worse means, he is so damn vague. I am going to insist he give me statistics and worse case scenarios at our Post Op appointment.
She is on a CPM machine for 12 hrs a night, she has PT 2 days per week at the Children's Hospital and husband and I do PT with her at home 2x per day.
Her PT said she will make progress during all the therapy , the true test will be after all therapy and the CPM machine cease.
She has been incredible thru all of this.
Things being so vague is just killing me inside.
I just wish I had some answers ...
Please keep easy child in your prayers ...
It is very rare and in alot of cases prognosis is not very good.
I am worried sick. I have tried to research this condition and speak with Dr's, Physical Therapists and anyone who will lend an ear. Everyone has the same response.
This is rare and unexplainable, we know very little about this condition.
The Ortho Specialist who is treating her informed us that 33% of kids make a full recovery, 33% stay the same and 33% get worse.
I need to know what worse means, he is so damn vague. I am going to insist he give me statistics and worse case scenarios at our Post Op appointment.
She is on a CPM machine for 12 hrs a night, she has PT 2 days per week at the Children's Hospital and husband and I do PT with her at home 2x per day.
Her PT said she will make progress during all the therapy , the true test will be after all therapy and the CPM machine cease.
She has been incredible thru all of this.
Things being so vague is just killing me inside.
I just wish I had some answers ...
Please keep easy child in your prayers ...