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Adhd\Sensory Integration Disorder (SID)\odd
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<blockquote data-quote="Mamaof5" data-source="post: 352598"><p>No NP yet, we're starting with psychiatry first. Sensory Integration Disorder (SID) (sensory integration dysfunction) is on the spectrum but apparently barely so. He makes friends, keeping them is another issue. It's an up and down thing, one moment friends, next enemies. He makes perfect eye contact actually, he'll stare you down if he's angry or raging at you and when he's fine he makes appropo eye contact. His body language indicates he's communicating as well as his extensive vocabulary. He certainly knows how to call me a "b!tch" that's for sure. He has no issues with both familiar and foreign places.</p><p></p><p>His obsessions are harping on one subject, question asking over and over, oddities like out of the blue asking a question that does not pertain to the conversation (like his mind is making associative connections he has attributed to remembering skills he's developed on his own as coping skills both in school and at home).</p><p></p><p>He does not trans from one activity to the other all that well, especially at school. He'll give up a task even before he tries it because he is afraid to fail the task (as per my observation and teachers). Organizational skills are nil, homework completion is almost nil and it's a fight to get him to sit either long enough or he does not complete the task and strays from the task multiple times. He needs reminders of the task and to back to it.</p><p></p><p>While I do believe that his Sensory Integration Disorder (SID) is partly to blame for this (the transitions from one activity to the other, obsessiveness over certain lines of questioning) his ADHD is the end causative of most of the rest of it except the rage and self mutilation issues (pulls his hair out, bites himself, punches himself) the tantrums, defiance issues, impulse control problems can be ADHD but I've seen that ADHD and ODD are co-morbid as well as leading to CP.</p><p></p><p>I don't believe it's Aspergers or Pervasive Developmental Disorder (PDD)-not otherwise specified - he does not display out right autism symptoms, Sensory Integration Disorder (SID) is debatable as to being on the spectrum (huge controversy over it) and I am in the camp that Sensory Integration Disorder (SID) is more like not otherwise specified - atypical autism spectrum.</p><p></p><p></p><p> </p><p>Sorry, I shortened your response to answer the other questions. By any chance you have a link to the Canadian study on preemies? I'd like to peruse that study out of curiosity being that I'm a twice over NICU mom (my youngest was 2 months preemie - 29 weeker and a 33 weeker - oldest and youngest).</p><p></p><p>The only thing, at this time, is an IEP for my son. However, there is a specialty school in Esp (2 hrs from us) that deals strictly with children like my Big B and Brooklies. I've considered transferring him to that school where he will get his own teacher aide. He apparently "out grew" the reading program at the current school despite them saying he's 2.5 years behind. How can they say he's that behind then say he out grew a program? It's counter productive.</p><p></p><p>His communication skills are above - he expresses extreme emotions well, very well. He hit his milestones slow at first - rolling at 8 months from back to front and front to back, sitting up at 10 months but milestones for walking (he skipped crawling in any shape or form) were fairly on target at 13\14 months.</p><p></p><p>Family history - Husband was diagnosis'ed with ADD (no words for ADHD but the suspected proper diagnosis is actually ADHD for my husband). Myself, like my sig says, chronic pain diseases and I do have a history of Pervasive Developmental Disorder (PDD) and Dysteria (seratonin uptake disorder that causes severe clinical depression). I was medicated for 3 years for it (Welbutrin 150mg\day) but for the last 2 yrs have been off medications and doing fine without them. I'm unmedicated for my chronic pain diseases because at the age of 30 "they" tell me I'm too young to be sick despite the medical evidence otherwise (whole other can of insensitive, lacking knowledge worms there).</p><p></p><p>Small town (less than 10 000 population) with small resources and lacking sorely in doctors\nurses and specialists.</p><p></p><p>Yes, I never expected to be a special needs mum, but I'm grateful that my children have blessed me with their presence and the privilege of being their mum. They've taught me patience, unconditional love, perseverance, to be better than I am or was and that I can be something and someone more than I could ever imagine I could be. It's just trying at times *lol* Thank you for the support, it helps to know I'm not uniquely alone, that I'm (unfortunately) not the only one. If I could wish one thing, it would be that all our children not have to suffer so profoundly like they do.</p></blockquote><p></p>
[QUOTE="Mamaof5, post: 352598"] No NP yet, we're starting with psychiatry first. Sensory Integration Disorder (SID) (sensory integration dysfunction) is on the spectrum but apparently barely so. He makes friends, keeping them is another issue. It's an up and down thing, one moment friends, next enemies. He makes perfect eye contact actually, he'll stare you down if he's angry or raging at you and when he's fine he makes appropo eye contact. His body language indicates he's communicating as well as his extensive vocabulary. He certainly knows how to call me a "b!tch" that's for sure. He has no issues with both familiar and foreign places. His obsessions are harping on one subject, question asking over and over, oddities like out of the blue asking a question that does not pertain to the conversation (like his mind is making associative connections he has attributed to remembering skills he's developed on his own as coping skills both in school and at home). He does not trans from one activity to the other all that well, especially at school. He'll give up a task even before he tries it because he is afraid to fail the task (as per my observation and teachers). Organizational skills are nil, homework completion is almost nil and it's a fight to get him to sit either long enough or he does not complete the task and strays from the task multiple times. He needs reminders of the task and to back to it. While I do believe that his Sensory Integration Disorder (SID) is partly to blame for this (the transitions from one activity to the other, obsessiveness over certain lines of questioning) his ADHD is the end causative of most of the rest of it except the rage and self mutilation issues (pulls his hair out, bites himself, punches himself) the tantrums, defiance issues, impulse control problems can be ADHD but I've seen that ADHD and ODD are co-morbid as well as leading to CP. I don't believe it's Aspergers or Pervasive Developmental Disorder (PDD)-not otherwise specified - he does not display out right autism symptoms, Sensory Integration Disorder (SID) is debatable as to being on the spectrum (huge controversy over it) and I am in the camp that Sensory Integration Disorder (SID) is more like not otherwise specified - atypical autism spectrum. Sorry, I shortened your response to answer the other questions. By any chance you have a link to the Canadian study on preemies? I'd like to peruse that study out of curiosity being that I'm a twice over NICU mom (my youngest was 2 months preemie - 29 weeker and a 33 weeker - oldest and youngest). The only thing, at this time, is an IEP for my son. However, there is a specialty school in Esp (2 hrs from us) that deals strictly with children like my Big B and Brooklies. I've considered transferring him to that school where he will get his own teacher aide. He apparently "out grew" the reading program at the current school despite them saying he's 2.5 years behind. How can they say he's that behind then say he out grew a program? It's counter productive. His communication skills are above - he expresses extreme emotions well, very well. He hit his milestones slow at first - rolling at 8 months from back to front and front to back, sitting up at 10 months but milestones for walking (he skipped crawling in any shape or form) were fairly on target at 13\14 months. Family history - Husband was diagnosis'ed with ADD (no words for ADHD but the suspected proper diagnosis is actually ADHD for my husband). Myself, like my sig says, chronic pain diseases and I do have a history of Pervasive Developmental Disorder (PDD) and Dysteria (seratonin uptake disorder that causes severe clinical depression). I was medicated for 3 years for it (Welbutrin 150mg\day) but for the last 2 yrs have been off medications and doing fine without them. I'm unmedicated for my chronic pain diseases because at the age of 30 "they" tell me I'm too young to be sick despite the medical evidence otherwise (whole other can of insensitive, lacking knowledge worms there). Small town (less than 10 000 population) with small resources and lacking sorely in doctors\nurses and specialists. Yes, I never expected to be a special needs mum, but I'm grateful that my children have blessed me with their presence and the privilege of being their mum. They've taught me patience, unconditional love, perseverance, to be better than I am or was and that I can be something and someone more than I could ever imagine I could be. It's just trying at times *lol* Thank you for the support, it helps to know I'm not uniquely alone, that I'm (unfortunately) not the only one. If I could wish one thing, it would be that all our children not have to suffer so profoundly like they do. [/QUOTE]
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