Ladies,
It has come to my attention that my body and brain are not functioning. At ALL. I can't seem to get into any doctor but my reg doctor and my rheumy - and BOTH are about out of advice. I can't even sit up some DAYS because I am so dizzy. I do my best, but this just stinks for the kids. Jess and thank you are really good about it, jess especially. But I don't know what to do to function better. EVERY BLESSED THING HURTS has me dizzy, causes migraines and /or vomiting. Some days I have to get up with husband to be able to walk out of our room. I am just at my wits end. On so many medications, not sure what to do, afraid to drive (quite literally afraid I will kill one of my kids or a stranger).
I drink as much liquid as I can to stay hydrated, but cannot eat much more than a few bites, even with phenergan or zofran in my system (not at the same time). Any ideas? Am on Lyrica, pain medications, muscle elaxers for spasms, thyroid medications (levels OK as far as teh docs can tell - still almost 2 months until I see the endocrinologist) Imitrex, and occasionally Lunesta (take more than 2 in a week and don't sleep for 4 days straight - but it works better than the other sleep medications have as I have not been able to sleep regularly for as long as I can remember).
I have had most of the problems since my early teens after a bout of chicken pox (which I can STILL get as I have NO immunity - discovered this while pregnant with difficult child). Migraines have been present since age 4. with-o the lyrica or some other preventative I have one constantly, literally. They go away for about 10-12 hours on Imitrex alone. But hten come back and you can only take a few a week or THEY cause problems.
I am just S I C K of being sick and tired.
Thanks for any suggestions. I don't want another 25 years of this crud. Been 24 and no end in site, but maybe with some suggestions I can get someone to try something new?? I can hope. I have taken both enbrel and humira for over 6 months each with NO results of any kind with either how I feel or my blood work, which is very strange.
Thanks.
It has come to my attention that my body and brain are not functioning. At ALL. I can't seem to get into any doctor but my reg doctor and my rheumy - and BOTH are about out of advice. I can't even sit up some DAYS because I am so dizzy. I do my best, but this just stinks for the kids. Jess and thank you are really good about it, jess especially. But I don't know what to do to function better. EVERY BLESSED THING HURTS has me dizzy, causes migraines and /or vomiting. Some days I have to get up with husband to be able to walk out of our room. I am just at my wits end. On so many medications, not sure what to do, afraid to drive (quite literally afraid I will kill one of my kids or a stranger).
I drink as much liquid as I can to stay hydrated, but cannot eat much more than a few bites, even with phenergan or zofran in my system (not at the same time). Any ideas? Am on Lyrica, pain medications, muscle elaxers for spasms, thyroid medications (levels OK as far as teh docs can tell - still almost 2 months until I see the endocrinologist) Imitrex, and occasionally Lunesta (take more than 2 in a week and don't sleep for 4 days straight - but it works better than the other sleep medications have as I have not been able to sleep regularly for as long as I can remember).
I have had most of the problems since my early teens after a bout of chicken pox (which I can STILL get as I have NO immunity - discovered this while pregnant with difficult child). Migraines have been present since age 4. with-o the lyrica or some other preventative I have one constantly, literally. They go away for about 10-12 hours on Imitrex alone. But hten come back and you can only take a few a week or THEY cause problems.
I am just S I C K of being sick and tired.
Thanks for any suggestions. I don't want another 25 years of this crud. Been 24 and no end in site, but maybe with some suggestions I can get someone to try something new?? I can hope. I have taken both enbrel and humira for over 6 months each with NO results of any kind with either how I feel or my blood work, which is very strange.
Thanks.