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<blockquote data-quote="buddy" data-source="post: 586081" data-attributes="member: 12886"><p>Hi. So glad you found us. </p><p>I agree with jjj and the others. At least if we were dying or had a physically sick child we'd have people supporting us.</p><p></p><p>I do have family and friends who care for sure. But very early had to become pretty self reliant, no one can really handle this.</p><p></p><p>I'd get jealous and hurt that my dad and stepmom would arrange time with all the other kids in the family but even when he went thru easy to care for spells I had to beg for an hour of emergency help. </p><p></p><p>My sisters would get portraits of their kids together, esp the two boys and leave Q out. They even would buy matching outfits. </p><p></p><p>Disabilities that affect behavior do leave us more isolated and without support. Yet we need it intensively. We have kids who actively hurt themselves or sibs or us! So many issues go along with that.</p><p></p><p>Sorry for those you know who are ill or lost their children, truly.</p><p>But your challenge is very intense and deserving of support. </p><p></p><p>So sending lots of supportive juju to you. Keep posting. People here get it.</p></blockquote><p></p>
[QUOTE="buddy, post: 586081, member: 12886"] Hi. So glad you found us. I agree with jjj and the others. At least if we were dying or had a physically sick child we'd have people supporting us. I do have family and friends who care for sure. But very early had to become pretty self reliant, no one can really handle this. I'd get jealous and hurt that my dad and stepmom would arrange time with all the other kids in the family but even when he went thru easy to care for spells I had to beg for an hour of emergency help. My sisters would get portraits of their kids together, esp the two boys and leave Q out. They even would buy matching outfits. Disabilities that affect behavior do leave us more isolated and without support. Yet we need it intensively. We have kids who actively hurt themselves or sibs or us! So many issues go along with that. Sorry for those you know who are ill or lost their children, truly. But your challenge is very intense and deserving of support. So sending lots of supportive juju to you. Keep posting. People here get it. [/QUOTE]
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