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Any Other difficult children Ever Say This?
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<blockquote data-quote="hexemaus2" data-source="post: 390766" data-attributes="member: 4560"><p>While I'm the farthest thing from an expert on medications, I can tell you about us and our family.</p><p> </p><p>With difficult child 1, I seldom listened to what she had to say about her medications, short of obvious physical symptoms or changes in her behavior that I NOTICED. I did in the beginning, until I realized she was being manipulative to find a reason, ANY reason, not to take medications. It made it hard, not knowing if she was saying something because it was the truth, or because she just wanted to stop taking medications all together.</p><p> </p><p>With difficult child 2, I found his input on what he was feeling with regard to certain medications very insightful. He seldom offered his insight unless asked, but when he did, the psychiatrists and I listened. In fact, his input on how he felt while on certain medications combined with what we observed was often the basis for sticking with a medication or trying something new. He had some pretty off-the-wall responses to various medications. In fact, he had a reaction to Zoloft that was so unusual the docs took pictures and consulted with the manufacturer who asked my permission for copies of difficult child's records in regards to it. (It looked like he had been "whipped" by little toy soldiers or something - weird, string-like, bruise-looking streaks on his arms and torso. They took him off it, waited two weeks, then "challenged" him again with it - same reaction. It was weird.)</p><p> </p><p>In any regard, difficult child 2 would often make comments about how he felt at different times during the day. There were several medications we tried where he made similar comments to your difficult child about not feeling like himself during a rage. Actually, his comments were more along the lines of "Fluffy was harder to control this time, Mom" or "Fluffy didn't feel like the normal Fluffy." ("Fluffy" - a reference to the three-headed dog in the first Harry Potter movie - was the name he gave his temper and violent side. It helped him separate his Autism Spectrum Disorders (ASD) behaviors from himself. He used "keeping Fluffy in his cage" as a metaphor for controling his outbursts. It helped keep him from beating himself up over things he did in the midst of a rage, without avoiding responsibility. It was an aspect of his gfgness he had to manage, just like a dog owner is responsible for controling a dog and keeping it from hurting others. He had to train Fluffy to behave.)</p><p> </p><p>In any regard, I found it helpful to listen to what difficult child 2 said about how he felt with different medications. After all, the only thing we had to go on was what we could observe. We couldn't get inside his head to see how the medication affected him from a mental standpoint. There were several medications that we stopped because difficult child told us himself that they made him angrier or meaner, thus making it harder for him to control "Fluffy."</p><p> </p><p>But like I said, I'm far from an expert. I can only tell you want we experienced, and yeah, there were a lot of medications we tried for ODD-type behaviors that made the behaviors worse instead of better. Poor kid was a walking pharmaceutical experiment, trying to find what worked for him.</p></blockquote><p></p>
[QUOTE="hexemaus2, post: 390766, member: 4560"] While I'm the farthest thing from an expert on medications, I can tell you about us and our family. With difficult child 1, I seldom listened to what she had to say about her medications, short of obvious physical symptoms or changes in her behavior that I NOTICED. I did in the beginning, until I realized she was being manipulative to find a reason, ANY reason, not to take medications. It made it hard, not knowing if she was saying something because it was the truth, or because she just wanted to stop taking medications all together. With difficult child 2, I found his input on what he was feeling with regard to certain medications very insightful. He seldom offered his insight unless asked, but when he did, the psychiatrists and I listened. In fact, his input on how he felt while on certain medications combined with what we observed was often the basis for sticking with a medication or trying something new. He had some pretty off-the-wall responses to various medications. In fact, he had a reaction to Zoloft that was so unusual the docs took pictures and consulted with the manufacturer who asked my permission for copies of difficult child's records in regards to it. (It looked like he had been "whipped" by little toy soldiers or something - weird, string-like, bruise-looking streaks on his arms and torso. They took him off it, waited two weeks, then "challenged" him again with it - same reaction. It was weird.) In any regard, difficult child 2 would often make comments about how he felt at different times during the day. There were several medications we tried where he made similar comments to your difficult child about not feeling like himself during a rage. Actually, his comments were more along the lines of "Fluffy was harder to control this time, Mom" or "Fluffy didn't feel like the normal Fluffy." ("Fluffy" - a reference to the three-headed dog in the first Harry Potter movie - was the name he gave his temper and violent side. It helped him separate his Autism Spectrum Disorders (ASD) behaviors from himself. He used "keeping Fluffy in his cage" as a metaphor for controling his outbursts. It helped keep him from beating himself up over things he did in the midst of a rage, without avoiding responsibility. It was an aspect of his gfgness he had to manage, just like a dog owner is responsible for controling a dog and keeping it from hurting others. He had to train Fluffy to behave.) In any regard, I found it helpful to listen to what difficult child 2 said about how he felt with different medications. After all, the only thing we had to go on was what we could observe. We couldn't get inside his head to see how the medication affected him from a mental standpoint. There were several medications that we stopped because difficult child told us himself that they made him angrier or meaner, thus making it harder for him to control "Fluffy." But like I said, I'm far from an expert. I can only tell you want we experienced, and yeah, there were a lot of medications we tried for ODD-type behaviors that made the behaviors worse instead of better. Poor kid was a walking pharmaceutical experiment, trying to find what worked for him. [/QUOTE]
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