Discussion in 'The Watercooler' started by flutterby, Jan 8, 2010.
This is officially where I stop caring.
Heather, I'm sorry. I hope you would get some answers.
Heather, I officially gave up caring a long time ago about a "specific" diagnosis. More, we are "treating" the symptoms thereby ruling out this & that, ruling in others by the outcome of the medications & various other therapies.
You cannot stop caring ~ you don't get to do that. You need to change your focus. My neuro doctor, along with my physiatrist, rheumatologist, & GP all agree on this treatment plan while watching for any flare ups on my sed rate & other issues is the best course. Even Mayo Clinic is out of ideas - was clueless over a year ago. That's when it became important to build up my strength & deal with the day to day.
Sweetie, the human body, at times, just doesn't give all the answers.
Take a break, rebuild your spirit - your soul. Decide what's next & go there. in my humble opinion, you need PT & Occupational Therapist (OT) to help you manage your everyday fatigue and pain.
Just food for thought.
I am so sorry about the disappointment.
I think Linda has some very important advice for you.
Sending gentle hugs...
If we were treating *anything*, I would probably care. But, we're not.
The pain mgmt clinic I was referred to that has PT and Occupational Therapist (OT) is not taking my insurance at this time because my insurance hasn't been paying them. They were supposed to have had a meeting with them this past Tuesday, but I haven't heard anything. I had the surgery Wed and have been sleeping off the anesthetic since so I haven't called.
So, yeah, I get to not care. I keep getting worse and nothing is being done about it.
I am sorry too. I was hoping you'd finally found an answer.
How annoying. I don't have any advice- but I would be frustrated, too.
Oh, Heather, I'm so sorry. I was hoping you'd finally have an answer. Many, many hugs.
It's okay to stop caring for a while, you can pick it back up again. We'll carry the caring and praying for you for a while. I'm sorry you are no closer to answers than before. How achingly frustrating.
I appreciate the support. Really.
I'm just toxic right now. I'm going to go crawl into a hole for a while.
I do know exactly how you feel, and your frusteration with the insurance not allowing you the care you need.
The condition that I have too, can not be completely understood and I do not have a difinitive diagnosis for myself. They are finally treating the conditions symptoms but not the condition itself. After a barage of every test imaginable, I truly am not one step closer to knowing what I have. For a long time I let not knowing really bother me. I worried that what I had might end up to be life threatening at some point. I worried, would my kids have a chance to have what I had. Was it heriditary??? Many more questions that I could not get answers to.
I finally got a doctor to start treating some of my syptoms a couple of years ago. After 6 months, he up and closed his practice and moved away!!! I went into panic mode!! I had to look for almost 2 months, 2 terribly long months to find another specialist, neurologist that would treat me with narcotic pain medications and other pain and condition medications. One that took my insurance! One that would give me the same medications that I had been on, that gave me back a life again with my family. One that would give me a chance to work again, to walk again, to know what it felt like to really live again!! The frusteration and anger at being in the position of needing these medications to simply life a somewhat normal life again for a change and having no medical professional to step up and hand it back to me. To hand back having a life!!!
All that to say this, DO NOT GIVE UP!!!!! DO NOT GIVE UP!!!!! and in case you did not catch that,
Do Not for any reason decide to Give UP !!!!!
Keep on looking for a doctor that will give you the help and medications you need. Do not accept no for an answer. Make them feel your pain and how it makes you feel. Don't be afraid to get emotional and even cry a few tears in front of them so they can see what you are going through.
Things can and will change, just make sure your determination makes it happen,
Thought and strength to hang on by a thread if needed,
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