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<blockquote data-quote="timer lady" data-source="post: 123557" data-attributes="member: 393"><p><span style="color: DarkRed"><strong>Sharon,</strong></span></p><p><span style="color: DarkRed"><strong></strong></span></p><p><span style="color: DarkRed"><strong>This has been more than chaotic. My neuro doctor along with a few other doctors asked Mayo to reconsider seeing me as a patient; they would like Mayo to "confirm" the Susac diagnosis & then set up the treatment protocols & such. I think it was a couple weeks back that I got the call from Mayo that I had an appointment mid March.</strong></span></p><p><span style="color: DarkRed"><strong></strong></span></p><p><span style="color: DarkRed"><strong>I don't understand the medical politics in getting into Mayo Clinic - I know it's difficult. I believe that someone there is doing research on Susac's & that's why I got in this time. </strong></span></p><p><span style="color: DarkRed"><strong></strong></span></p><p><span style="color: DarkRed"><strong>I've lost track of the treatment plan so I purchased a personal medical records software package. (I can track the entire family in many areas & it will sync to my PDA so I can carry it with me. ) In the meantime, I'm writing then recording on my computer everything that's being said to me in appts. There is just a bunch of information that is coming my way - the hard part is that it's all so repetitive & means little to me.</strong></span></p><p><span style="color: DarkRed"><strong></strong></span></p><p><span style="color: DarkRed"><strong>Keep fingers crossed about care for kt - my sister is willing to stay with kt except for the crisis situations. It's over her head & she's not comfortable doing it. </strong></span></p><p><span style="color: DarkRed"><strong></strong></span></p><p><span style="color: DarkRed"><strong></strong></span></p></blockquote><p></p>
[QUOTE="timer lady, post: 123557, member: 393"] [COLOR=DarkRed][B]Sharon, This has been more than chaotic. My neuro doctor along with a few other doctors asked Mayo to reconsider seeing me as a patient; they would like Mayo to "confirm" the Susac diagnosis & then set up the treatment protocols & such. I think it was a couple weeks back that I got the call from Mayo that I had an appointment mid March. I don't understand the medical politics in getting into Mayo Clinic - I know it's difficult. I believe that someone there is doing research on Susac's & that's why I got in this time. I've lost track of the treatment plan so I purchased a personal medical records software package. (I can track the entire family in many areas & it will sync to my PDA so I can carry it with me. ) In the meantime, I'm writing then recording on my computer everything that's being said to me in appts. There is just a bunch of information that is coming my way - the hard part is that it's all so repetitive & means little to me. Keep fingers crossed about care for kt - my sister is willing to stay with kt except for the crisis situations. It's over her head & she's not comfortable doing it. [/B][/COLOR] [/QUOTE]
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