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For crying out loud, I can't do ANYTHING normal!!!
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<blockquote data-quote="flutterbee" data-source="post: 105852"><p>It's not unusual for me to be up at 3 am. I've always been a night owl so I'm used to it. I get my energy at night. But, last night my mind was racing and I had SO many good ideas and noone to share them with. Of course, I can't remember ANY of them now. hehehehehe</p><p></p><p>WW - This is what my doctor said. You have this muscle (or group, not sure, and I don't remember what it's called) that goes up the back of your neck and attaches to the base of your skull. It also goes along your shoulders and then makes a diamond shape around your back - so it goes out like to the rib cage. That is what is causing these headaches. When I put my head down with my chin toward my chest, I feel it pull - painfully - all the way down my back and across my ribs. I'm also having a lot of pain in my neck, shoulders and shoulder blades. My head yesterday was hurting along the right side of that muscle all down my neck, all the way to the top of my head, my right eye and ear hurt and I could feel every tooth on the right side. </p><p></p><p>I have some kind of inflammation, she says, some kind of rheumatic something or other - what we don't know yet. She had me on voltaren which is an NSAID and it's been doing nothing, yet I continue to take it because I'm a good girl. It hasn't done anything for pain. She has put me on steroids, but I hadn't started them yet because I had appts and I don't do so well on steroids. I was going to start them this (Tuesday) morning, but I finally went to sleep around 5am, made sure easy child was up at 6am and went back to sleep til around 1pm. I'm going to start them tomorrow (Wednesday) as I have nowhere I *have* to be this week or next week so if I'm out of commission, it's ok.</p><p></p><p>The headache is gone today. Thank God. But, I'm having a lot of pain in my neck, left shoulder and shoulder blade. So I took another pain pill tonight. It's amazing - how you don't realize how much you're hurting everyday until it's significantly diminished. It's been a part of my life for so long that I guess it's become normal. It's just been getting worse is all.</p><p></p><p> <div class="ubbcode-block"><div class="ubbcode-header">Originally Posted By: timer lady</div><div class="ubbcode-body">And I have to remind myself that I'm in my first year of a chronic illness; that I have yet to really discover where this illness is going & how I will have to change my day to day schedules & such to accomodate my body.</p><p></p><p>You will have to find a way to do the same. Again, you are in the first year of this; the year of having to define yourself & change your daily life to accomodate your body. </div></div> </p><p></p><p>I guess that's what I'm doing wrong. I'm trying to adjust, but I think I'm fighting it more. I will not let myself think anything other than we'll figure out what it is, start treatment and I'll be able to return to business as usual. I'm not ready to even contemplate anything else. I can't.</p></blockquote><p></p>
[QUOTE="flutterbee, post: 105852"] It's not unusual for me to be up at 3 am. I've always been a night owl so I'm used to it. I get my energy at night. But, last night my mind was racing and I had SO many good ideas and noone to share them with. Of course, I can't remember ANY of them now. hehehehehe WW - This is what my doctor said. You have this muscle (or group, not sure, and I don't remember what it's called) that goes up the back of your neck and attaches to the base of your skull. It also goes along your shoulders and then makes a diamond shape around your back - so it goes out like to the rib cage. That is what is causing these headaches. When I put my head down with my chin toward my chest, I feel it pull - painfully - all the way down my back and across my ribs. I'm also having a lot of pain in my neck, shoulders and shoulder blades. My head yesterday was hurting along the right side of that muscle all down my neck, all the way to the top of my head, my right eye and ear hurt and I could feel every tooth on the right side. I have some kind of inflammation, she says, some kind of rheumatic something or other - what we don't know yet. She had me on voltaren which is an NSAID and it's been doing nothing, yet I continue to take it because I'm a good girl. It hasn't done anything for pain. She has put me on steroids, but I hadn't started them yet because I had appts and I don't do so well on steroids. I was going to start them this (Tuesday) morning, but I finally went to sleep around 5am, made sure easy child was up at 6am and went back to sleep til around 1pm. I'm going to start them tomorrow (Wednesday) as I have nowhere I *have* to be this week or next week so if I'm out of commission, it's ok. The headache is gone today. Thank God. But, I'm having a lot of pain in my neck, left shoulder and shoulder blade. So I took another pain pill tonight. It's amazing - how you don't realize how much you're hurting everyday until it's significantly diminished. It's been a part of my life for so long that I guess it's become normal. It's just been getting worse is all. <div class="ubbcode-block"><div class="ubbcode-header">Originally Posted By: timer lady</div><div class="ubbcode-body">And I have to remind myself that I'm in my first year of a chronic illness; that I have yet to really discover where this illness is going & how I will have to change my day to day schedules & such to accomodate my body. You will have to find a way to do the same. Again, you are in the first year of this; the year of having to define yourself & change your daily life to accomodate your body. </div></div> I guess that's what I'm doing wrong. I'm trying to adjust, but I think I'm fighting it more. I will not let myself think anything other than we'll figure out what it is, start treatment and I'll be able to return to business as usual. I'm not ready to even contemplate anything else. I can't. [/QUOTE]
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For crying out loud, I can't do ANYTHING normal!!!
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