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Going out of my mind?!
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<blockquote data-quote="Andee" data-source="post: 213346" data-attributes="member: 3508"><p>About my six... #1 came 6 weeks early, 18 weeks after her ID twin was miscarried. The placenta was over 50% necrotic at delivery (related to the baby miscarried). She was septic at birth; went to NICU Isolation right away; spent a week on strong antibiotics; had her 1st of dozens of ear infections at 2 weeks - so multiple courses of various antibiotics; tubes went in the first time around 9 months - and she heard her first fire engine! Scared her so badly! We lived 3 houses down from the fire station. Tubes were supposed to help keep ear infections away - didn't - for her. After the surgery she began having many other problems and was diagnosis'd with apnea and bradycardia (yes, at 9 mos). She started school with an EI program because at 3 she still wasn't talking - just saying a few isolated words. Hearing tests still showed moderate loss in both ears. In 1st grade we added absence seizures to her growing list of diagnosis's (seizures-absence & febrile, hearing loss, speech delay, chronic recurrent ear infections). School was challenging with ARD meetings every quarter and IEPs updated every year because things were always changing with her. At 16 we added Central Auditory Processing Disorder (CAPD) and ADHD to the mix. At 25 most of the childhood issues have resolved but she still has Central Auditory Processing Disorder (CAPD) and ADHD to deal with plus PTSD (from abusive dad).</p><p>#2 came 4-5 weeks late, postmature issues, did fine until 12 mos. Caught a virus, sick for 3 months, fevers at times were 105, began losing skills, by 15 mos could no longer feed herself or even sit up; switched docs - new pedi saw a baby in resp distress from 10-15 feet away and came to us instantly! Put her on asthma medications with great success. Then we discovered the prolonged hypoxia had caused brain damage. By 39 mos we had a list of diagnosis's: Seizures- tonic/clonic or grand mal, absence, complex partial, partial, febrile and "drop" (I forget the medical term - but total loss of muscle function); speech delay with-out hearing loss; developmental delay (functioning at 6mos then); ? on cognitive development. That was answered somewhat when the therpists realized she had a photographic memory and could memorize, comprehend and repeat ASL with a single exposure - she began learning 20-30 signs per session! And using them right away at home while we consulted the many sheets of signs sent home with her. LOL At 4 we learned she was nearly blind - strong eyeglass prescription was done and when they were put on her she immediately signed "Mom has face!"!!! At 10 we added global apraxias to her list, static encephalopathy, poorly controlled seizure disorder, poorly controlled asthma, vision issues, speech issues... in so many ways she was still behind her peers. At 13 we added congenital hip dysplasia, and ADHD with-bipolar tendencies. At 17 we added schizoaffective disorder with-depression. At 22 we added spinal osteoarthritis... and she was finally approved for SSI/SSDI.</p><p>... time for dinner... sorry folks... I'll get back on later tonight and continue my replies! And work on getting to know all of you more. <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /></p></blockquote><p></p>
[QUOTE="Andee, post: 213346, member: 3508"] About my six... #1 came 6 weeks early, 18 weeks after her ID twin was miscarried. The placenta was over 50% necrotic at delivery (related to the baby miscarried). She was septic at birth; went to NICU Isolation right away; spent a week on strong antibiotics; had her 1st of dozens of ear infections at 2 weeks - so multiple courses of various antibiotics; tubes went in the first time around 9 months - and she heard her first fire engine! Scared her so badly! We lived 3 houses down from the fire station. Tubes were supposed to help keep ear infections away - didn't - for her. After the surgery she began having many other problems and was diagnosis'd with apnea and bradycardia (yes, at 9 mos). She started school with an EI program because at 3 she still wasn't talking - just saying a few isolated words. Hearing tests still showed moderate loss in both ears. In 1st grade we added absence seizures to her growing list of diagnosis's (seizures-absence & febrile, hearing loss, speech delay, chronic recurrent ear infections). School was challenging with ARD meetings every quarter and IEPs updated every year because things were always changing with her. At 16 we added Central Auditory Processing Disorder (CAPD) and ADHD to the mix. At 25 most of the childhood issues have resolved but she still has Central Auditory Processing Disorder (CAPD) and ADHD to deal with plus PTSD (from abusive dad). #2 came 4-5 weeks late, postmature issues, did fine until 12 mos. Caught a virus, sick for 3 months, fevers at times were 105, began losing skills, by 15 mos could no longer feed herself or even sit up; switched docs - new pedi saw a baby in resp distress from 10-15 feet away and came to us instantly! Put her on asthma medications with great success. Then we discovered the prolonged hypoxia had caused brain damage. By 39 mos we had a list of diagnosis's: Seizures- tonic/clonic or grand mal, absence, complex partial, partial, febrile and "drop" (I forget the medical term - but total loss of muscle function); speech delay with-out hearing loss; developmental delay (functioning at 6mos then); ? on cognitive development. That was answered somewhat when the therpists realized she had a photographic memory and could memorize, comprehend and repeat ASL with a single exposure - she began learning 20-30 signs per session! And using them right away at home while we consulted the many sheets of signs sent home with her. LOL At 4 we learned she was nearly blind - strong eyeglass prescription was done and when they were put on her she immediately signed "Mom has face!"!!! At 10 we added global apraxias to her list, static encephalopathy, poorly controlled seizure disorder, poorly controlled asthma, vision issues, speech issues... in so many ways she was still behind her peers. At 13 we added congenital hip dysplasia, and ADHD with-bipolar tendencies. At 17 we added schizoaffective disorder with-depression. At 22 we added spinal osteoarthritis... and she was finally approved for SSI/SSDI. ... time for dinner... sorry folks... I'll get back on later tonight and continue my replies! And work on getting to know all of you more. :) [/QUOTE]
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