Hi and welcome. My son is on the spectrum, I am a Speech Language Pathologist (SLP) and knew he had brain damage from a mass, and STILL I just didn't want to say autism spectrum. I actually asked the psychiatric I liked at work (a child dev. center) to do an evaluation for behavioral issues and several of my co workers had to sit down with me and go step by step through the criteria so I could see how, even if at the time the level of a behavior may have seemed milder, it DID actually fit the criteria. WOW did my heart break. I was also afraid that it meant he would not make progress as well (even though I never thought that about other kids, lol) and that he might not be treated for the things I KNEW were issues (the brain injury). I laugh now when I think of it, but it was scary and sad at the time.
A school label is a label for educational purposes only. It is not used by the medical community as a diagnosis so most use it as a way to get services and Autism Spectrum Disorders (ASD) opens LOTS of doors you do not want shut. Once he has an IEP, in the future if you feel the category is wrong you can work on that, but for now...USE IT. Get all that you can get for him because it means Occupational Therapist (OT) opens up, SL services open up etc.
I assume by IEPER you mean IEP plus Evaluation Report meeting.???? (different districts call them different things). Once you get going with this, then maybe you would feel more comfortable going through a private evaluation process with a neuropsychologist to see if he really does fall on the spectrum or if he is more adhd plus sensory difficulties, plus speech/language impaired. Having a private speech/lang and occupational therapy evaluation done will also probably in your case.
Can you explain what about that label you are not comfortable with? There are certainly kids who are not on the spectrum who can have the symptoms your child does so not saying you are wrong, just many here have to fight for services so we might view this as a road in, and feel you are lucky in some strange respect..... The current way to medically diagnose a child on the spectrum is to have an evaluation (which SHOULD be more than a single appointment with no outside data) and to put them in a category from the DSM IV (the medical books with diagnostic codes) under Pervasive Developmental Disorder (PDD). The categories under that are autism, Aspergers Disorder, disintegrative autism, Rett's syndrome and finally there is a code for kids who may have a little bit from one of the other categories (or two) but just doesn't really meet the criteria, yet they do have similar issues which kind of affect communication and social interaction. Those kids get the diagnosis of Pervasive Developmental Disorder (PDD)-not otherwise specified(not otherwise specified). A school psychiatric can tell you that is what theythink but the truth is in schools there is ONLY one group...the Autism Spectrum Disorders (ASD) group. (THe new diagnostic manual is changing to just Autism Spectrum Disorders (ASD) too). This means your child probably is doing pretty well, has a ton of potential, and given the right supports (not punished just for acting out), may be one of those kids who people barely know is on the spectrum. (yes, there are others who seem more Autism Spectrum Disorders (ASD) as time goes by and social demands become more challenging too). Still, It is easy for me to say that to you....that it will be ok and probably a good thing you got someone who is offering services, but I know my mommy heart didn't believe it and was sooo sad once I did start to think they were right.
I am sorry you are going through this. Give yourself time but dont worry that this label is forever. Most of us have had our kids receive different diagnosis over the years. It is all part of the process. Kids grow and change.
For now, in my humble opinion (you do what you feel is right and we will stand by you) I'd suggest waiting to see what services are being offered and focus on that. THAT is what will make the difference for you no matter what they call the bigger category.
HUGS, Dee