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i'Tourette's Syndrome a forever thing they all agree
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<blockquote data-quote="susiestar" data-source="post: 403981" data-attributes="member: 1233"><p>Jen, have you ever been exposed to any treatment for Obsessive Compulsive Disorder (OCD)? It generally uses something called exposure therapy and can be very very helpful. in my opinion a lot of difficult child's behaviors are anxiety related to the point of Obsessive Compulsive Disorder (OCD). There are a lot of other things mixed in, no doubt at all, but getting a handle on the Obsessive Compulsive Disorder (OCD) using this type of therapy will give her real tools for dealing with this and future problems. Obsessive Compulsive Disorder (OCD) is an anxiety disorder and has specific requirements for treatment. One is that OFTEN a higher dose of medications is needed than is used for other disorders. Wiz has Obsessive Compulsive Disorder (OCD) tendencies. They are mild on the Obsessive Compulsive Disorder (OCD) scale but still hard to handle. He is on a level of medications that few docs are even aware are ever given, but they work well for him and have for several years (knock on wood). Obsessive Compulsive Disorder (OCD) isn't "just" anxiety, it is an extreme degree of anxiety and the behaviors are used to control the anxiety but they don't work and wreck the rest of your life.</p><p> </p><p>A and E used to have a show about this, I think it was called Obsessed. It gave an idea of the process. VH1 just did a show about it last May called "The Obsessive Compulsive Disorder (OCD) Project" (<a href="http://www.vh1.com/shows/the_ocd_project/video.jhtml" target="_blank">http://www.vh1.com/shows/the_ocd_project/video.jhtml</a> ). Full episodes are available at the link. I haven't seen it, but it might give you some ideas for what to ask of tdocs and psychiatrists who will try to help you. I am actually surprised that they didn't do any of this at the program you are in. It is what I thought would be going on there. </p><p> </p><p>As you call around you may get more help if you ask for docs who are able to treat Obsessive Compulsive Disorder (OCD) rather than asking for those who treat food phobias. Docs are people and like many of us they think of food issues and go to anorxia and bulimia and that type of treatment, when this is NOT going to respond to that. You got some great insight into the situation fromt he people in Portland, and it has been invaluable. To get the long term help you need you are going to have to find something different. Maybe a more Obsessive Compulsive Disorder (OCD) related approach would be a better path to healing for her?</p><p> </p><p>Keep working on things, but as you make calls, ask about this. Also remember to call some of the pediatrician hospitals again. WHile they may not have programs for eating disorders, they often have programs for Obsessive Compulsive Disorder (OCD), so starting to call them again might be really helpful. </p><p> </p><p>I am sorry that this isn't something that will be fixed and then over but is something that she has to fight for a long time. Esp as it has such consequences for her body long term. I hope you can find some resources to help. If you don't have resources by Monday morning, as the hospital to have a social worker help you find and make the appts because you don't know anyone and cannot even get call backs, much less appts. PUSH them, even cry if you need to (hey, sometimes it helps. Use it if you need it, Know what I mean??)</p><p> </p><p>Lots of hugs!</p></blockquote><p></p>
[QUOTE="susiestar, post: 403981, member: 1233"] Jen, have you ever been exposed to any treatment for Obsessive Compulsive Disorder (OCD)? It generally uses something called exposure therapy and can be very very helpful. in my opinion a lot of difficult child's behaviors are anxiety related to the point of Obsessive Compulsive Disorder (OCD). There are a lot of other things mixed in, no doubt at all, but getting a handle on the Obsessive Compulsive Disorder (OCD) using this type of therapy will give her real tools for dealing with this and future problems. Obsessive Compulsive Disorder (OCD) is an anxiety disorder and has specific requirements for treatment. One is that OFTEN a higher dose of medications is needed than is used for other disorders. Wiz has Obsessive Compulsive Disorder (OCD) tendencies. They are mild on the Obsessive Compulsive Disorder (OCD) scale but still hard to handle. He is on a level of medications that few docs are even aware are ever given, but they work well for him and have for several years (knock on wood). Obsessive Compulsive Disorder (OCD) isn't "just" anxiety, it is an extreme degree of anxiety and the behaviors are used to control the anxiety but they don't work and wreck the rest of your life. A and E used to have a show about this, I think it was called Obsessed. It gave an idea of the process. VH1 just did a show about it last May called "The Obsessive Compulsive Disorder (OCD) Project" ([URL]http://www.vh1.com/shows/the_ocd_project/video.jhtml[/URL] ). Full episodes are available at the link. I haven't seen it, but it might give you some ideas for what to ask of tdocs and psychiatrists who will try to help you. I am actually surprised that they didn't do any of this at the program you are in. It is what I thought would be going on there. As you call around you may get more help if you ask for docs who are able to treat Obsessive Compulsive Disorder (OCD) rather than asking for those who treat food phobias. Docs are people and like many of us they think of food issues and go to anorxia and bulimia and that type of treatment, when this is NOT going to respond to that. You got some great insight into the situation fromt he people in Portland, and it has been invaluable. To get the long term help you need you are going to have to find something different. Maybe a more Obsessive Compulsive Disorder (OCD) related approach would be a better path to healing for her? Keep working on things, but as you make calls, ask about this. Also remember to call some of the pediatrician hospitals again. WHile they may not have programs for eating disorders, they often have programs for Obsessive Compulsive Disorder (OCD), so starting to call them again might be really helpful. I am sorry that this isn't something that will be fixed and then over but is something that she has to fight for a long time. Esp as it has such consequences for her body long term. I hope you can find some resources to help. If you don't have resources by Monday morning, as the hospital to have a social worker help you find and make the appts because you don't know anyone and cannot even get call backs, much less appts. PUSH them, even cry if you need to (hey, sometimes it helps. Use it if you need it, Know what I mean??) Lots of hugs! [/QUOTE]
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