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just diagnosed with leukemia
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<blockquote data-quote="pepperidge" data-source="post: 541704" data-attributes="member: 2322"><p>hoI guess one of my fears is whether this will send one or more difficult children off in a tailspin got some good advice from the social worker. I think in many ways it might be better that I am in hospital (or within spitting distance of it) which means being away from home. I'd like to think that all the difficult child nastiness will disappear but maybe it willl get worse. My poor husband. Driving to see me a couple times a week, dealing with difficult children, and trying to keep himself healthy. Really i am the last priority because I am getting great loving care.</p><p></p><p>Janet I think I am slightly hypomanic from all the prednisone I am on. </p><p>there are so many factors that could determine the outcome that i am trying just to focus on the day to day and since I feel great right now it is not so hard. I mean, here i am in the hospital, someone cleans my room cooks my meals no one is making demands on me it is kind of like a mini vacation. They have already done the basic tests (bone marrow etc) so I have a lot of free time. Just trying not to focus on the ultimate prognosis though hopefully I will meet with the expert doctor on that next week.</p><p></p><p>Mostly there is so much to learn about the disease, treatment etc that its keeping be busy.</p><p></p><p>The journey selects us, we don't select the journey as we know well with our difficult children. About all I can do at this point is take each day as it comes and make the best of it. I cried for awhile last night thinking about not being there for my difficult children. But right now I can keep those thoughs at bay most of the days. I don't think it will help my kids to see me crying about dying. I am probably still in shock about the whole thing. </p><p>I'm not looking for medical advice unless someone has some experience. Mostly just hugs and thotughts on how to deal emotionally with difficult children. We have pretty good supports in place for them but gosh I hope they don't go off the rails when i am in the hospital. It woul be nice to think they might rise to the ocassion but after all they are kids and difficult children at that.</p></blockquote><p></p>
[QUOTE="pepperidge, post: 541704, member: 2322"] hoI guess one of my fears is whether this will send one or more difficult children off in a tailspin got some good advice from the social worker. I think in many ways it might be better that I am in hospital (or within spitting distance of it) which means being away from home. I'd like to think that all the difficult child nastiness will disappear but maybe it willl get worse. My poor husband. Driving to see me a couple times a week, dealing with difficult children, and trying to keep himself healthy. Really i am the last priority because I am getting great loving care. Janet I think I am slightly hypomanic from all the prednisone I am on. there are so many factors that could determine the outcome that i am trying just to focus on the day to day and since I feel great right now it is not so hard. I mean, here i am in the hospital, someone cleans my room cooks my meals no one is making demands on me it is kind of like a mini vacation. They have already done the basic tests (bone marrow etc) so I have a lot of free time. Just trying not to focus on the ultimate prognosis though hopefully I will meet with the expert doctor on that next week. Mostly there is so much to learn about the disease, treatment etc that its keeping be busy. The journey selects us, we don't select the journey as we know well with our difficult children. About all I can do at this point is take each day as it comes and make the best of it. I cried for awhile last night thinking about not being there for my difficult children. But right now I can keep those thoughs at bay most of the days. I don't think it will help my kids to see me crying about dying. I am probably still in shock about the whole thing. I'm not looking for medical advice unless someone has some experience. Mostly just hugs and thotughts on how to deal emotionally with difficult children. We have pretty good supports in place for them but gosh I hope they don't go off the rails when i am in the hospital. It woul be nice to think they might rise to the ocassion but after all they are kids and difficult children at that. [/QUOTE]
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just diagnosed with leukemia
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