Hi,
I've been mostly a lurker for such a long time, years in fact, but have gathered so much wisdom. My difficult child is now facing graduation from high school. I've held strong according to all I've read from this board. This board has been such a BIG HELP in making decisions regarding difficult child.
I read every single day about all of you that I feel...um...like a lurker and maybe a stalker??!!!
I'm writing today as difficult child is 18 and fixin' to graduation from HS. I'm constantly on the school and gratefully, I can check difficult child's grades online. I have gotten so much info from here that, well, the school "people" comment all the time how "we have never seen a child to get so many accomidations". So, thank every one of you for helping on this journey.
My problem, is that difficult child is not ready to be on his own. Dealing with his cancer and other problems, frankly has taken a toll on me. I keep constant on my rules, my new husband is on board, but....he's the stepdad. difficult child does not respect all that husband does for him. I'm in a quandry. I wish difficult child would understand all that stepdad does for him. difficult child's dad--what can I say--he's an alcoholic and now has numerous other problems due to that. We've kept in constant contact--actually way too much for my comfort that at times I just don't want to answer the phone cuz it's xD. However, difficult child loves his Dad. With difficult child's condition, we need to talk--Dr appts, chemo therapy, etc.
I don't know. Sometimes, I just want to scream!!! I'm in the middle of my current husband and xD and difficult child. Recently, all I can figure out, is to keep everyone separate from each other and keep the peace.
Currently, we are taking him down from zyprexa. His current insurance (now that his is 18) doesn't cover future treatments. I've been doing what his pysch said to do (before coverage stopped) but it's almost 2 months and now...what do I do?? His Oncologist is not sure either as difficult child has turned out to be a "very special patient" ...great...just what we need. Why special? Well, difficult child, not only does he have emotional disorders (taking trileptal and zyprexa) his body DOES NOT LIKE the main chemo drug Methothrexate. It's been hell. It's causing nerve damage. His Onc is trying to find a doctor that can help, but so far, no go.
We started out at 7.5 mg zyprexa, went to 5mg and for the last 2 months 2.5. I feel we're on our own as to what to do to take difficult child off the rest of the zyprexa. He's doing really well, actually, with just a little bit of a problem sleeping at night. I'm still keeping on top but just don't know where to go from here. What do you do when there is no psychiatrist to help?
Thanks goodness for hair coloring as I'd be completely gray right now.
If you've read this far, thank you. Sometimes, it just help to talk with others regarding our difficult child's.
MaryB
I've been mostly a lurker for such a long time, years in fact, but have gathered so much wisdom. My difficult child is now facing graduation from high school. I've held strong according to all I've read from this board. This board has been such a BIG HELP in making decisions regarding difficult child.
I read every single day about all of you that I feel...um...like a lurker and maybe a stalker??!!!
I'm writing today as difficult child is 18 and fixin' to graduation from HS. I'm constantly on the school and gratefully, I can check difficult child's grades online. I have gotten so much info from here that, well, the school "people" comment all the time how "we have never seen a child to get so many accomidations". So, thank every one of you for helping on this journey.
My problem, is that difficult child is not ready to be on his own. Dealing with his cancer and other problems, frankly has taken a toll on me. I keep constant on my rules, my new husband is on board, but....he's the stepdad. difficult child does not respect all that husband does for him. I'm in a quandry. I wish difficult child would understand all that stepdad does for him. difficult child's dad--what can I say--he's an alcoholic and now has numerous other problems due to that. We've kept in constant contact--actually way too much for my comfort that at times I just don't want to answer the phone cuz it's xD. However, difficult child loves his Dad. With difficult child's condition, we need to talk--Dr appts, chemo therapy, etc.
I don't know. Sometimes, I just want to scream!!! I'm in the middle of my current husband and xD and difficult child. Recently, all I can figure out, is to keep everyone separate from each other and keep the peace.
Currently, we are taking him down from zyprexa. His current insurance (now that his is 18) doesn't cover future treatments. I've been doing what his pysch said to do (before coverage stopped) but it's almost 2 months and now...what do I do?? His Oncologist is not sure either as difficult child has turned out to be a "very special patient" ...great...just what we need. Why special? Well, difficult child, not only does he have emotional disorders (taking trileptal and zyprexa) his body DOES NOT LIKE the main chemo drug Methothrexate. It's been hell. It's causing nerve damage. His Onc is trying to find a doctor that can help, but so far, no go.
We started out at 7.5 mg zyprexa, went to 5mg and for the last 2 months 2.5. I feel we're on our own as to what to do to take difficult child off the rest of the zyprexa. He's doing really well, actually, with just a little bit of a problem sleeping at night. I'm still keeping on top but just don't know where to go from here. What do you do when there is no psychiatrist to help?
Thanks goodness for hair coloring as I'd be completely gray right now.
If you've read this far, thank you. Sometimes, it just help to talk with others regarding our difficult child's.
MaryB