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General Parenting
Mega meltdown, possible dissociative state updated
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<blockquote data-quote="susiestar" data-source="post: 83666" data-attributes="member: 1233"><p>I can only imagine the fear and pain kt is in. I was 13 when my mom started having symptoms that we now know are PBC (autoimune liver disease). 2 years later we finally got a diagnosis. The diagnosis was lupus. And at the time ALL the literature said that it was a death sentence. Her doctor said it was not, and to NOT go look up the disease in the library. So of course I did.</p><p></p><p>My bro was away in the ARmy when mom was diagnosis'd. He went to the base library (he was in trainig after boot camp, scheduled to go to Germany). He tried to get leave through the Red Cross, based on what he learned in the library. HE was terrified, it took us several YEARS to get through to him.</p><p></p><p>Kt has had such a tumultuous life, this threat to the one person she most relies on is truly terrifying. Good for her, being able to tell the doctor she does not believe him. </p><p></p><p>I wish she would believe him. Only time will disprove kt's horrible thoughts. It has been a hard road for her. </p><p></p><p>If kt wants to ask a kid how it feels to have a mom who is sick with this, how to cope, etc,,, she can send questions to my Jess. Jess has handled a LOT, I have been sick with this crud since before she was born. We have done a lot of work on coping skills, therapy,etc...</p><p></p><p>Also, the local hospital may have a support group for kids who's parents have a chronic illness. I know they have classes for kids periodically at our hospital, and I have frineds in a bigger city who take their kids to one.</p><p></p><p>Just thoughts, I know she is scared.</p><p></p><p>Hugs,</p><p></p><p>Susie</p></blockquote><p></p>
[QUOTE="susiestar, post: 83666, member: 1233"] I can only imagine the fear and pain kt is in. I was 13 when my mom started having symptoms that we now know are PBC (autoimune liver disease). 2 years later we finally got a diagnosis. The diagnosis was lupus. And at the time ALL the literature said that it was a death sentence. Her doctor said it was not, and to NOT go look up the disease in the library. So of course I did. My bro was away in the ARmy when mom was diagnosis'd. He went to the base library (he was in trainig after boot camp, scheduled to go to Germany). He tried to get leave through the Red Cross, based on what he learned in the library. HE was terrified, it took us several YEARS to get through to him. Kt has had such a tumultuous life, this threat to the one person she most relies on is truly terrifying. Good for her, being able to tell the doctor she does not believe him. I wish she would believe him. Only time will disprove kt's horrible thoughts. It has been a hard road for her. If kt wants to ask a kid how it feels to have a mom who is sick with this, how to cope, etc,,, she can send questions to my Jess. Jess has handled a LOT, I have been sick with this crud since before she was born. We have done a lot of work on coping skills, therapy,etc... Also, the local hospital may have a support group for kids who's parents have a chronic illness. I know they have classes for kids periodically at our hospital, and I have frineds in a bigger city who take their kids to one. Just thoughts, I know she is scared. Hugs, Susie [/QUOTE]
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