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My son was diagnosed with idiopathic chondrolysis
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<blockquote data-quote="shellyd67" data-source="post: 551569" data-attributes="member: 6371"><p>I am going to private message you my email. </p><p></p><p>I am assuming you live in the Philadelphia area ? I live in that area and chose to use AI Dupont in Wilmington Delaware. (only 15 minutes from my house)</p><p></p><p>My daughter was diagnosed quickly by a Pediatric Orthopedist who also specializes in Oncology.</p><p></p><p>He did extensive testing. First he did bloodwork, xrays, cat scans and then a full body bone scan. He and a group of his partners had many meetings and conferences to discuss and confirm my daughter's case.</p><p></p><p>She also had joint manipulation and a steriod shot in the ER. This was also 100% confirmation of her diagnosis.</p><p></p><p>She was misdiagnosed at first with Idiopathic Osteo Osteomia (sp?) Of course Idiopathic means unexplainable.</p><p></p><p>A CPM machine is a motion machine normally used for knee and hip replacement therapy in adults. It allows continuous motion to promote healing.</p><p></p><p>There is little information on this disease and I did reach out to a Professor from Brown University who did case studies on it.</p><p></p><p>He informed me that his study, a 5 year old boy used Enbrel ( the medication for rhematoid arthritis) and had no luck.</p><p></p><p>He also told me the boys' brother was diagnosed shortly after. That would lead me to believe this could be genetic ?</p><p></p><p>My daughter also had a great attitude and believe me this helps with healing. She was diagnosed in May and by the beginning of September she was back to normal. She did loose 10% motion permanently but it is almost impossible to notice.</p><p></p><p>I look forward to hearing from you. Shelly:smiles:</p></blockquote><p></p>
[QUOTE="shellyd67, post: 551569, member: 6371"] I am going to private message you my email. I am assuming you live in the Philadelphia area ? I live in that area and chose to use AI Dupont in Wilmington Delaware. (only 15 minutes from my house) My daughter was diagnosed quickly by a Pediatric Orthopedist who also specializes in Oncology. He did extensive testing. First he did bloodwork, xrays, cat scans and then a full body bone scan. He and a group of his partners had many meetings and conferences to discuss and confirm my daughter's case. She also had joint manipulation and a steriod shot in the ER. This was also 100% confirmation of her diagnosis. She was misdiagnosed at first with Idiopathic Osteo Osteomia (sp?) Of course Idiopathic means unexplainable. A CPM machine is a motion machine normally used for knee and hip replacement therapy in adults. It allows continuous motion to promote healing. There is little information on this disease and I did reach out to a Professor from Brown University who did case studies on it. He informed me that his study, a 5 year old boy used Enbrel ( the medication for rhematoid arthritis) and had no luck. He also told me the boys' brother was diagnosed shortly after. That would lead me to believe this could be genetic ? My daughter also had a great attitude and believe me this helps with healing. She was diagnosed in May and by the beginning of September she was back to normal. She did loose 10% motion permanently but it is almost impossible to notice. I look forward to hearing from you. Shelly:smiles: [/QUOTE]
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My son was diagnosed with idiopathic chondrolysis
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