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<blockquote data-quote="susiestar" data-source="post: 414181" data-attributes="member: 1233"><p>While there may be some who are upset or insulted by the language that we use, I think that most parents who need us can see how truly loving and caring we are, and also how supportive this forum is if they read a few threads. I truly believe that those who get so upset by the language that we use, whatever it may be, are just not ready and would find something to turn them away until the time when they are ready.</p><p> </p><p>That is my belief. Whether I am right or not, well, none of us will ever really know. But I am super glad to meet you and to have you join us.. I know what you mean about your 'typical' child being a gift from God - I have often remarked that my daughter is my reward for not strangling or abusing my difficult child. This is partly tongue in cheek, but only partly. She has the gentlest, most loving, warm hearted personality and truly amazes me with her capacity to turn the other cheek. She stands up for herself when needed, usually very well and in a way that makes everyone involved <em>happy</em> to do things her way or change things the way she demands. So I can see why the labels difficult child and easy child could seem strange, but mostly they just hlep us know which child you are speaking about.</p><p> </p><p>It sounds like you have gotten quite a bit of help for your sons so far. have they had complete neuropsychologist evaluations? Does your son with Sensory Integration Disorder (SID) get brushing therapy at home, at school, or both? Does he get sensory breaks throughout his day? Treating Sensory Integration Disorder (SID) can make HUGE differences in what a child feels, does and even thinks - right down to how he thinks and feels about himself. Brushing therapy actually <em>rewires</em> the brain to handle sensory input in a more typical way - and does it without medication or anything invasive. The degree of help it can give is truly shocking. My youngest couldn't even attend school every day for years. He would get so overstimulated that he would just sit and sort of vibrate and everything made him cry or else he would start reacting to all kinds of foods. When he wasn't overstimulated he didn't react nearly as strongly to many foods (which our allergist thought was impossible until he saw it happen - then he thought it was the coolest thing he ever saw. Go figure.) He couldn't even sit through a church service. We had to sit in a certain area under the choir loft and he had to be able to leave about halfway through. Then a few months after we started brushing he started sitting through more and mroe of the service and not needing all day to unwind from it. He went from missing more than 1/2 of the year in kdg (still had straight A's and no truancy issues bc he had a 504 plan that allowed the absences - and a great school too) to missing 1 day a week in third grade to missing no days in the first half of fifth grade and only a few this second half due to a nasty virus and a big snowstorm. It just makes an enormous difference, even though the therapy may not seem to do much or it may seem silly that it could change how he handles things or how his brain works.</p><p> </p><p>I don't know if you have any sensory issues. I do. Not as many as my youngest child, more than my other children. foods, fabrics, textures, smells, tastes, types of movevent, these and many others can evoke a resonse so strong that I literally cannot control it. I abhor perfume and think it should be illegal the way smoking it. Mostly because it gives me a vicious headache with jsut a small whiff. For many years my oldest was just fine with pizza but let him get a speck of tomato in his mouth from ANY other dish and he would gag or vomit. My husband was furious over this, said he was faking, blah blah blah. Then I served something my husband just gags over when he eats it and I told him that he was just spoiled and faking etc.... It was the last time he used that argument. husband just didn't have a clue about sensory issues because his are so minor. </p><p> </p><p>If there is something that is soothing for one of the kids, try to make sure you have it easily accessible during stressful things. My daughter has always loved that silky edge of the blankets she had as a little girl. We even sewed a length of it onto the car seat because she hated to ride in the car for a few months as a baby. It soothed and calmed her dramatically. If the kids have troubles in school have the school set up things that are soothing in a sensory manner for them. Others can explain that better.</p><p> </p><p>If you haven't gotten a copy of "the Out of Sync Child Has Fun", I highly recommend it. It is packed iwth sensory activities to provide whatever input is needed in a fun way. The whole family will love it.</p><p> </p><p>Welcome to our group!</p></blockquote><p></p>
[QUOTE="susiestar, post: 414181, member: 1233"] While there may be some who are upset or insulted by the language that we use, I think that most parents who need us can see how truly loving and caring we are, and also how supportive this forum is if they read a few threads. I truly believe that those who get so upset by the language that we use, whatever it may be, are just not ready and would find something to turn them away until the time when they are ready. That is my belief. Whether I am right or not, well, none of us will ever really know. But I am super glad to meet you and to have you join us.. I know what you mean about your 'typical' child being a gift from God - I have often remarked that my daughter is my reward for not strangling or abusing my difficult child. This is partly tongue in cheek, but only partly. She has the gentlest, most loving, warm hearted personality and truly amazes me with her capacity to turn the other cheek. She stands up for herself when needed, usually very well and in a way that makes everyone involved [I]happy[/I] to do things her way or change things the way she demands. So I can see why the labels difficult child and easy child could seem strange, but mostly they just hlep us know which child you are speaking about. It sounds like you have gotten quite a bit of help for your sons so far. have they had complete neuropsychologist evaluations? Does your son with Sensory Integration Disorder (SID) get brushing therapy at home, at school, or both? Does he get sensory breaks throughout his day? Treating Sensory Integration Disorder (SID) can make HUGE differences in what a child feels, does and even thinks - right down to how he thinks and feels about himself. Brushing therapy actually [I]rewires[/I] the brain to handle sensory input in a more typical way - and does it without medication or anything invasive. The degree of help it can give is truly shocking. My youngest couldn't even attend school every day for years. He would get so overstimulated that he would just sit and sort of vibrate and everything made him cry or else he would start reacting to all kinds of foods. When he wasn't overstimulated he didn't react nearly as strongly to many foods (which our allergist thought was impossible until he saw it happen - then he thought it was the coolest thing he ever saw. Go figure.) He couldn't even sit through a church service. We had to sit in a certain area under the choir loft and he had to be able to leave about halfway through. Then a few months after we started brushing he started sitting through more and mroe of the service and not needing all day to unwind from it. He went from missing more than 1/2 of the year in kdg (still had straight A's and no truancy issues bc he had a 504 plan that allowed the absences - and a great school too) to missing 1 day a week in third grade to missing no days in the first half of fifth grade and only a few this second half due to a nasty virus and a big snowstorm. It just makes an enormous difference, even though the therapy may not seem to do much or it may seem silly that it could change how he handles things or how his brain works. I don't know if you have any sensory issues. I do. Not as many as my youngest child, more than my other children. foods, fabrics, textures, smells, tastes, types of movevent, these and many others can evoke a resonse so strong that I literally cannot control it. I abhor perfume and think it should be illegal the way smoking it. Mostly because it gives me a vicious headache with jsut a small whiff. For many years my oldest was just fine with pizza but let him get a speck of tomato in his mouth from ANY other dish and he would gag or vomit. My husband was furious over this, said he was faking, blah blah blah. Then I served something my husband just gags over when he eats it and I told him that he was just spoiled and faking etc.... It was the last time he used that argument. husband just didn't have a clue about sensory issues because his are so minor. If there is something that is soothing for one of the kids, try to make sure you have it easily accessible during stressful things. My daughter has always loved that silky edge of the blankets she had as a little girl. We even sewed a length of it onto the car seat because she hated to ride in the car for a few months as a baby. It soothed and calmed her dramatically. If the kids have troubles in school have the school set up things that are soothing in a sensory manner for them. Others can explain that better. If you haven't gotten a copy of "the Out of Sync Child Has Fun", I highly recommend it. It is packed iwth sensory activities to provide whatever input is needed in a fun way. The whole family will love it. Welcome to our group! [/QUOTE]
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