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General Parenting
New here with new diagnosis and medical issues
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<blockquote data-quote="OneSweetWorld" data-source="post: 103065" data-attributes="member: 4384"><p>Hello and thank you all for your comments</p><p></p><p>Jake had the neuro testing done, that is where the ADHD and ODD diagnosis came from.</p><p></p><p>As for his GI issues, he is diagnosis with nerve damage to his stomach and small intestine, he is currently not on any GI medications due to Zelnorm being off the market now...nothing else had worked except proplusid, but was taken off that when the CVS started, right now since is not vomiting all the time, we may have a chance to go back into the protocall program.</p><p></p><p>He has had an EEG done, that showed abnormal, no sezuires, but spikes thru out the whole test. They than repeated when he was in a cycle and that EEG was normal. He has been treated with every preventive medication for CVS, is now is on Topamax....he has been on Amitrip to depakote to propanal...while the cycles are now 4-6 weeks apart vs every two weeks, it is still runs his life.</p><p></p><p>He is battling weight issues, that we are going to address next week. He is 45 inches tall and weights 37lbs...we too have tried everything for weight, with no luck.</p><p></p><p>I do not know if medications are the answers or not, but I do not know what else to do.</p><p></p><p>I have my meeting tomorrow..he has a 504 in place now, but it is based on his medical stuff, until I get the final report for the Neuro testing, we can not move forward with that.</p><p></p><p>Thanks again for everyone's input.</p></blockquote><p></p>
[QUOTE="OneSweetWorld, post: 103065, member: 4384"] Hello and thank you all for your comments Jake had the neuro testing done, that is where the ADHD and ODD diagnosis came from. As for his GI issues, he is diagnosis with nerve damage to his stomach and small intestine, he is currently not on any GI medications due to Zelnorm being off the market now...nothing else had worked except proplusid, but was taken off that when the CVS started, right now since is not vomiting all the time, we may have a chance to go back into the protocall program. He has had an EEG done, that showed abnormal, no sezuires, but spikes thru out the whole test. They than repeated when he was in a cycle and that EEG was normal. He has been treated with every preventive medication for CVS, is now is on Topamax....he has been on Amitrip to depakote to propanal...while the cycles are now 4-6 weeks apart vs every two weeks, it is still runs his life. He is battling weight issues, that we are going to address next week. He is 45 inches tall and weights 37lbs...we too have tried everything for weight, with no luck. I do not know if medications are the answers or not, but I do not know what else to do. I have my meeting tomorrow..he has a 504 in place now, but it is based on his medical stuff, until I get the final report for the Neuro testing, we can not move forward with that. Thanks again for everyone's input. [/QUOTE]
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