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new here... y is my daughter like this? Social skills are off!!!!!!!!!!!!!!
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<blockquote data-quote="Marguerite" data-source="post: 346633" data-attributes="member: 1991"><p>We found a lot of doctors and specialists said to us, "Now your child has a diagnosis on the autism spectrum, you will be OK, there is plenty of help through the Autism Association."</p><p></p><p>We found this was not the case. It's also not fair of people to expect a charity, not government-funded, to have to meet everybody's needs. There was some help available but more on a triage basis. We'd get some help for a while, enough to get us on the right track, then we were on our own again. resources were limited.</p><p></p><p>We also found that a lot of what we were working out for ourselves instinctively, was exactly what our kids needed. Much of the help we've given our kids, we happened on it ourselves. Sometimes what we did worked, sometimes it didn't. </p><p></p><p>Having a good neuropsychologist report can help, but it's only a start. Long-term, we've needed a specialist to prescribe stimulant medications (which can work for those who have an ADD component). The report can help get special provisions and support at school. Remember, this is a disability and the child is entitled to a "fair go"; to have access to an education despite the disability. No child should miss out or get less of an education, because their disability gets in the way. A blind child needs help to get around the need to copy off the blackboard. A deaf child needs support when they can't hear. A child who has other Pervasive Developmental Disorder (PDD)-ish issues also is entitled to the same level of being taken seriously and given the supports they need.</p><p></p><p>What your child needs will vary. Also, a lot of people can't see past the behaviours, which for these kids are a reaction to the environment plus a coping strategy (not always a healthy one). They are entitled to help too. But we often have to fight harder, because it is an invisible disability.</p><p></p><p>I just went digging and found the link to a story featured last year on Aussie TV. It includes an interview with my son, difficult child 3. If you watch it, ignore the rubbish about stem cell research. difficult child 3 was the only autistic child able to be personally interviewed. Remember, this is autism, not just Asperger's. But difficult child 3 has worked hard to get his language into the "normal" range. Remember, he 'failed' his first IQ test, although he has since scored as having an IQ in the 140 range. What he had to say about what it's like to be autistic, I thought might help you. There is a lot of similarity (from the point of view of the person with this) between autism and Asperger's.</p><p></p><p>Again, we're not saying your child has Asperger's for sure. But it sure makes an effective working hypothesis!</p><p></p><p>Go to the link and if you need to, look for the clip labelled "autism solutions".</p><p><a href="http://au.tv.yahoo.com/sunday-night/video/-/page/3/#fop" target="_blank">http://au.tv.yahoo.com/sunday-night/video/-/page/3/#fop</a></p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 346633, member: 1991"] We found a lot of doctors and specialists said to us, "Now your child has a diagnosis on the autism spectrum, you will be OK, there is plenty of help through the Autism Association." We found this was not the case. It's also not fair of people to expect a charity, not government-funded, to have to meet everybody's needs. There was some help available but more on a triage basis. We'd get some help for a while, enough to get us on the right track, then we were on our own again. resources were limited. We also found that a lot of what we were working out for ourselves instinctively, was exactly what our kids needed. Much of the help we've given our kids, we happened on it ourselves. Sometimes what we did worked, sometimes it didn't. Having a good neuropsychologist report can help, but it's only a start. Long-term, we've needed a specialist to prescribe stimulant medications (which can work for those who have an ADD component). The report can help get special provisions and support at school. Remember, this is a disability and the child is entitled to a "fair go"; to have access to an education despite the disability. No child should miss out or get less of an education, because their disability gets in the way. A blind child needs help to get around the need to copy off the blackboard. A deaf child needs support when they can't hear. A child who has other Pervasive Developmental Disorder (PDD)-ish issues also is entitled to the same level of being taken seriously and given the supports they need. What your child needs will vary. Also, a lot of people can't see past the behaviours, which for these kids are a reaction to the environment plus a coping strategy (not always a healthy one). They are entitled to help too. But we often have to fight harder, because it is an invisible disability. I just went digging and found the link to a story featured last year on Aussie TV. It includes an interview with my son, difficult child 3. If you watch it, ignore the rubbish about stem cell research. difficult child 3 was the only autistic child able to be personally interviewed. Remember, this is autism, not just Asperger's. But difficult child 3 has worked hard to get his language into the "normal" range. Remember, he 'failed' his first IQ test, although he has since scored as having an IQ in the 140 range. What he had to say about what it's like to be autistic, I thought might help you. There is a lot of similarity (from the point of view of the person with this) between autism and Asperger's. Again, we're not saying your child has Asperger's for sure. But it sure makes an effective working hypothesis! Go to the link and if you need to, look for the clip labelled "autism solutions". [url]http://au.tv.yahoo.com/sunday-night/video/-/page/3/#fop[/url] Marg [/QUOTE]
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new here... y is my daughter like this? Social skills are off!!!!!!!!!!!!!!
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