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<blockquote data-quote="keista" data-source="post: 448410" data-attributes="member: 11965"><p>WOW! You certainly do have a lot of issues to deal with. It also sounds as if you and her doctors are heading in the right direction with evaluations and such. Consider yourself 'lucky'. I know that's hard to see, and hard to feel considering your circumstances, but too many parents get useless dxes and doctors refuse to probe further.</p><p></p><p>Yes, your daughter is VERY young and much too young for some definitive dxes BUT you and the docs are still exploring and treating whatever you can. </p><p></p><p>It can be sooooooooooooooo difficult when they are young with no support or relief. When you talk to any of the docs, ask if they know of any respite care resources. Obviously you need more than just a babysitter for this child. You need someone skilled in dealing with such issues. Leave no stone unturned trying to find that respite care.</p><p></p><p>Make sure to take care of YOU! If you don't keep up with your medications and your own self care you will be useless to her and the other kids. You know this, I'm just sending a gentle reminder.</p><p></p><p>((((HUGS)))) You've found a great place for support in this board. Welcome.</p></blockquote><p></p>
[QUOTE="keista, post: 448410, member: 11965"] WOW! You certainly do have a lot of issues to deal with. It also sounds as if you and her doctors are heading in the right direction with evaluations and such. Consider yourself 'lucky'. I know that's hard to see, and hard to feel considering your circumstances, but too many parents get useless dxes and doctors refuse to probe further. Yes, your daughter is VERY young and much too young for some definitive dxes BUT you and the docs are still exploring and treating whatever you can. It can be sooooooooooooooo difficult when they are young with no support or relief. When you talk to any of the docs, ask if they know of any respite care resources. Obviously you need more than just a babysitter for this child. You need someone skilled in dealing with such issues. Leave no stone unturned trying to find that respite care. Make sure to take care of YOU! If you don't keep up with your medications and your own self care you will be useless to her and the other kids. You know this, I'm just sending a gentle reminder. ((((HUGS)))) You've found a great place for support in this board. Welcome. [/QUOTE]
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