T
Texasfilly79
Guest
Alot of us have had our children diagnosed from an early age with different syndroms.
husband and I are just now starting the diagnoses with his oldest, Stephen who is 17, and trying desperatly to find out what is the root cause so that A) we can improve his quality of life so that he can one day live on his own and B) find out WHAT we can improve and what is a lost cause.
His psychologist is no longer thinking autism (which I didn't think was an accurate diagnosis as he does not have all of the symptoms) but is now leaning towards a brain injury as an infant (Shaken Baby Syndrome) which after reading the after affects, fits.
Based on the symptoms below does anyone have a child, or know of a child, that the symptoms fit but is coming up with a different diagnois?
ONly reaon I am question the shaken baby syndrome, is 1) His Mom is not all together herself and shows some (but not all) of Stephens symptoms (Socialism, self esteem, etc) and 2) Stephen was diagnosed at the age of 3 with Leukemia, wouldn't a health professional have noticed all of the missing milestones and started raising red flags??
Symptoms
Scasticy (ridgity of the hands/arms) - can not hold a pen correctly and handwriting is the same level as a 3rd grader learning cursive.
Unable to process language
Inability to have free thought (Can't explain what he is thinking)
Inability to understand emotions (He crys but is unable to explain why)
Unable to process social clues
Speech issues (hard time sounding out certain syllables)
Anxiety level THROUGH THE ROOF!!! (So bad that he would pee in his pants rather than bring the slight bit of attention that would cause with him getting up to go to the bathroom) - This is being taken care of by zoloft so his anxiety level is coming down, and quickly.
Unable to make a descision
Non Exsistant Fine Motor Skills
Mentality of a 12 year old
And of course, social issues and self esteem issues.
We are unable to get our hands on the doctors records that we need (milestone checkups, birth records, psychological test, etc) from his previous doctors (grumble grumble grumble) we are basically starting from scratch.
And of course, bio mom won't answer any of our questions (heck, she wouldn't even tell us he was taken Special Education in high school, the way she spoke he was in AP Classes.
Any help you can give would be greatly appreciated. We do know there was no major trauma at birth, and while a part of me agrees with shaken baby syndrome, the larger part of me doesn't want to accept it.
husband and I are just now starting the diagnoses with his oldest, Stephen who is 17, and trying desperatly to find out what is the root cause so that A) we can improve his quality of life so that he can one day live on his own and B) find out WHAT we can improve and what is a lost cause.
His psychologist is no longer thinking autism (which I didn't think was an accurate diagnosis as he does not have all of the symptoms) but is now leaning towards a brain injury as an infant (Shaken Baby Syndrome) which after reading the after affects, fits.
Based on the symptoms below does anyone have a child, or know of a child, that the symptoms fit but is coming up with a different diagnois?
ONly reaon I am question the shaken baby syndrome, is 1) His Mom is not all together herself and shows some (but not all) of Stephens symptoms (Socialism, self esteem, etc) and 2) Stephen was diagnosed at the age of 3 with Leukemia, wouldn't a health professional have noticed all of the missing milestones and started raising red flags??
Symptoms
Scasticy (ridgity of the hands/arms) - can not hold a pen correctly and handwriting is the same level as a 3rd grader learning cursive.
Unable to process language
Inability to have free thought (Can't explain what he is thinking)
Inability to understand emotions (He crys but is unable to explain why)
Unable to process social clues
Speech issues (hard time sounding out certain syllables)
Anxiety level THROUGH THE ROOF!!! (So bad that he would pee in his pants rather than bring the slight bit of attention that would cause with him getting up to go to the bathroom) - This is being taken care of by zoloft so his anxiety level is coming down, and quickly.
Unable to make a descision
Non Exsistant Fine Motor Skills
Mentality of a 12 year old
And of course, social issues and self esteem issues.
We are unable to get our hands on the doctors records that we need (milestone checkups, birth records, psychological test, etc) from his previous doctors (grumble grumble grumble) we are basically starting from scratch.
And of course, bio mom won't answer any of our questions (heck, she wouldn't even tell us he was taken Special Education in high school, the way she spoke he was in AP Classes.
Any help you can give would be greatly appreciated. We do know there was no major trauma at birth, and while a part of me agrees with shaken baby syndrome, the larger part of me doesn't want to accept it.