Dara
New Member
Well, we were turned down by CHIP and SSI. We make too much money to get any help but not enough money to afford anything. We have no health insurance so we cant afford to do the $1000.00 blodd test Sammy needs or the $4000.00 Sleep study he needs or even go to the Dr to get him tested for MS. That doesnt even include the therapy he needs that we cant do. How are we supposed to help our child? We can barely afford normal household bills let alone medical expenses? I dont get it! We have these kids, who have all of these special needs and the cost of helping them literally breaks us and there is no assistance for us who dont live in a cardboard box or make millions. I am so frustrated and lost! I dont care if you are a democrat or republican. It shouldnt matter! These people in washington should stop bickering like 2 year olds and put their differences aside and actually have an intelligent conversation about what we really need! We should make sure that all of our citizens are taken care of and looked after.
On a good note, the school Sammy is going to has been amazing! They really understand these kiddos and do everything in their power to help. They have a behaviorlist on staff that I spoke to for an hour on thursday. She thinks that it is insane that people have told us that it is something subtle we are doing and that the rages are less likely behavior and more likely his brain having some problems. She is trying to find someone to work with us either Pro Bono or at a reduced cost. The support system at this school is amazing too!
Well, sorry about my crazy rant... Hope everyone has a good Thanksgiving!
On a good note, the school Sammy is going to has been amazing! They really understand these kiddos and do everything in their power to help. They have a behaviorlist on staff that I spoke to for an hour on thursday. She thinks that it is insane that people have told us that it is something subtle we are doing and that the rages are less likely behavior and more likely his brain having some problems. She is trying to find someone to work with us either Pro Bono or at a reduced cost. The support system at this school is amazing too!
Well, sorry about my crazy rant... Hope everyone has a good Thanksgiving!