I am not familiar with Chicago, but I understand your sister in law's fear and refusal to accept I dunno for an answer.
She needs a major headache clinic. I think Yale or one of the big name medical schools has one. I would try children's hospitals first, but with a team approach, rather than each doctor in his office only calling other docs now and then. I would think someone, somewhere would be able to take this child inpatient (with her mom) and find a way to really help.
Have they tried old fashioned narcotics? Maybe with something like aambien CR or even an older sleep medication. My thoughts are that sometimes the body needs to sleep for an extended period of time to sort of let itself "reset". I would want her to be given small doses of the medication at first and then build up to a level that will let her sleep for 18 hours or so, possibly several days in a row.
The other horrible cause is analgesic rebound. As each medication wears off it triggers the body to recharge the headache because the little amount of pain relief is going away. That is how the body sees it.
Has anyone tried midrin or fiorinal or muscle relaxers or even a combination of medications including valium or ativan?
I will keep the girl in my prayers. WHY isn't there something like House for KIDS?
She needs a major headache clinic. I think Yale or one of the big name medical schools has one. I would try children's hospitals first, but with a team approach, rather than each doctor in his office only calling other docs now and then. I would think someone, somewhere would be able to take this child inpatient (with her mom) and find a way to really help.
Have they tried old fashioned narcotics? Maybe with something like aambien CR or even an older sleep medication. My thoughts are that sometimes the body needs to sleep for an extended period of time to sort of let itself "reset". I would want her to be given small doses of the medication at first and then build up to a level that will let her sleep for 18 hours or so, possibly several days in a row.
The other horrible cause is analgesic rebound. As each medication wears off it triggers the body to recharge the headache because the little amount of pain relief is going away. That is how the body sees it.
Has anyone tried midrin or fiorinal or muscle relaxers or even a combination of medications including valium or ativan?
I will keep the girl in my prayers. WHY isn't there something like House for KIDS?
