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Sorry but need to vent a bit...this is my other difficult child
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<blockquote data-quote="mazdamama" data-source="post: 499815" data-attributes="member: 12227"><p>Thanks for the hugs and comments. I do have an entire top drawer of a file cabinet with David's info from over the years including his birth record from when he was air lifted to Orlando after his birth.</p><p>He was a very floppy baby and did not know he had a left side at all. That was when it was discovered that part of his right brain had not developed and he was hydrocephalic. A shunt was not put in because of the extra room in his skull. He was evaluated for seizures as it appeared he was having petit mal ones but a 48 hr test showed no seizure activity. He was also diagnosis'd with a spinal tether which the neurosurgeon released when he was 7. He was having bowel problems and getting extremely constipated. The surgeon and neurologist noted it was in an area where bowel function could be hindered. Since the surgery no more constipation.</p><p>Bio mom and dad were living with me for the majority of this pregnancy and there was no alcohol in the house but one of the medications she took and OD'd on with the combo of other medications was Zoloft. She was on that for her own mental problems.</p><p>David was seen in St Petersburg at All Children's by a developmental and behavioral specialist that is well known and is known to be a great dr. He is and he is the one that said that David is a puzzle. He diagnosis'd him with the high functioning autism, developmental delays, megacephalic (big head) and behavioral issues. Each and every report from him was copied and given to the school. I did finally stop taking him to Dr S because the man was toooo busy. The medications were not being monitored that he was on, no blood work ordered, etc. If you had an appointment and broke down on the 2 1/2 hr drive there it would be 6 months before you could get fit in again. Locally he sees an ARNP for a psychiatrist and the first thing she said was HE NEEDS LABWORK!!. He also sees a therapist there that he really listens to, This is to a point that when she tells him to be positive about things and smile he gets this big smile on his face. On the short ride back to the school he keeps that funny smile but when we get back in the office he will ask if he can now stop smiling because his face is hurting.</p><p>Right now he is on Abilify 2.5 mg AM & PM, Focalin XR 15 mg in the AM and Prozac 10 mg in the AM. Did contact his therapist (who is livid at the school) and she is contacting the ARNP. School had mentioned having him Baker Acted. This is not a mental health issue....this is a neurological issue. That would be the worst thing they could do.</p><p></p><p>He was below grade level last year and got a 1 on the FCAT, smae problems they are having this year. He was passed to 4th for good cause.....still is not learning a darn thing there but is expected to take and pass the 4th grade FCAT.</p><p></p><p>This is an extremely brilliant child (probably a savant) that when he was 7 months old I was told would never walk or talk. He does both. I even have a pin that reads "Not All Autistic Children Don't Talk, Some Never Shut Up!" He is losing out on an education that he deserves and now they will be dealing with me. With Daniel safe where he is I have a bit more fight in me. I am going to demand that he has an aide that knows how to work with a child with autism AND developmental delays that make him act like a 4-5 yr old. They can change his placement for all I care as long as he is getting the education he deserves. Mama MAD!!</p></blockquote><p></p>
[QUOTE="mazdamama, post: 499815, member: 12227"] Thanks for the hugs and comments. I do have an entire top drawer of a file cabinet with David's info from over the years including his birth record from when he was air lifted to Orlando after his birth. He was a very floppy baby and did not know he had a left side at all. That was when it was discovered that part of his right brain had not developed and he was hydrocephalic. A shunt was not put in because of the extra room in his skull. He was evaluated for seizures as it appeared he was having petit mal ones but a 48 hr test showed no seizure activity. He was also diagnosis'd with a spinal tether which the neurosurgeon released when he was 7. He was having bowel problems and getting extremely constipated. The surgeon and neurologist noted it was in an area where bowel function could be hindered. Since the surgery no more constipation. Bio mom and dad were living with me for the majority of this pregnancy and there was no alcohol in the house but one of the medications she took and OD'd on with the combo of other medications was Zoloft. She was on that for her own mental problems. David was seen in St Petersburg at All Children's by a developmental and behavioral specialist that is well known and is known to be a great dr. He is and he is the one that said that David is a puzzle. He diagnosis'd him with the high functioning autism, developmental delays, megacephalic (big head) and behavioral issues. Each and every report from him was copied and given to the school. I did finally stop taking him to Dr S because the man was toooo busy. The medications were not being monitored that he was on, no blood work ordered, etc. If you had an appointment and broke down on the 2 1/2 hr drive there it would be 6 months before you could get fit in again. Locally he sees an ARNP for a psychiatrist and the first thing she said was HE NEEDS LABWORK!!. He also sees a therapist there that he really listens to, This is to a point that when she tells him to be positive about things and smile he gets this big smile on his face. On the short ride back to the school he keeps that funny smile but when we get back in the office he will ask if he can now stop smiling because his face is hurting. Right now he is on Abilify 2.5 mg AM & PM, Focalin XR 15 mg in the AM and Prozac 10 mg in the AM. Did contact his therapist (who is livid at the school) and she is contacting the ARNP. School had mentioned having him Baker Acted. This is not a mental health issue....this is a neurological issue. That would be the worst thing they could do. He was below grade level last year and got a 1 on the FCAT, smae problems they are having this year. He was passed to 4th for good cause.....still is not learning a darn thing there but is expected to take and pass the 4th grade FCAT. This is an extremely brilliant child (probably a savant) that when he was 7 months old I was told would never walk or talk. He does both. I even have a pin that reads "Not All Autistic Children Don't Talk, Some Never Shut Up!" He is losing out on an education that he deserves and now they will be dealing with me. With Daniel safe where he is I have a bit more fight in me. I am going to demand that he has an aide that knows how to work with a child with autism AND developmental delays that make him act like a 4-5 yr old. They can change his placement for all I care as long as he is getting the education he deserves. Mama MAD!! [/QUOTE]
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Sorry but need to vent a bit...this is my other difficult child
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