Susiestar

Discussion in 'The Watercooler' started by everywoman, Apr 22, 2009.

  1. everywoman

    everywoman Active Member

    I saw something on the news---in fact, it's on right now. It's about a young boy with a disease called Dystonia.
    http://www.ninds.nih.gov/disorders/dystonias/detail_dystonias.htm
    It reminded me of Jess. The young boys symptoms were eerily similar to what you describe is going on with her.
    It may be worth looking into.
    The boy had deep brain stimulation---similar to the procedure they do for Parkinsons and is now playing soccer again.
     
  2. susiestar

    susiestar Roll With It

    Thank you MUCHLY!! This does sound like something I need to look into. I will ask our neurologist about it. IF he doesn't give a satisfactory answer then I will ask another neurologist or 3.

    I do hope it isn't this. I really do. But if it is, then we will get it treated as best it can be.
     
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