BusynMember
Well-Known Member
Sonic had his intensive neuropsychologist today so that we can plan for his future as he will turn 18 in August. While he was being tested, hub and I got three parent evaluations to fill out--one was the Connors, I think the other was ADOS (the Aspie test) and not sure about the other. Here is my gripe:
They DIAGNOSE kids partly based on our answers. But the answers are not flexible. Example:
(paraphrased): My child interacts with other children.
The answers are Never, Occasionally, Sometimes, Often and Very Often. The problem is that there is also a BUT! Sonic will socialize with the kids he's known for years at school. He will eat lunch with them and be comfortable with them...HOWEVER, he will not even look a kid he doesn't know in the eyes, let along initiate any conversation. So what is the answer? At home he never tries to invite anybody over. He is a loner. He is not depressed...he prefers being alone. At school he interacts. This is but one of 2/3rds of the questions that hub and I could not really answer without explaining. However...
When scored, they are only scored by answer without an explanation. The questionnaires reminded me of Aspies...overly concrete with no gray area. It was frustrating and time consuming to fill them out. I do not believe they really tell an honest story and can't imagine how they can diagnose based on those tests. Now Sonic's teacher has to also fill out all of these questionnaires (poor guy). I'm sure he'll have the same struggle. In the end, because Sonic is so different at school, his answers will vary greatly from ours.
I wish they had a blood test for all these disorders. Honestly, I'll bet more people are misdiagnosed then correctly diagnosed. A long, tiring day for hub, me and Sonic. We had to travel quite far to see this recommended facility.
They DIAGNOSE kids partly based on our answers. But the answers are not flexible. Example:
(paraphrased): My child interacts with other children.
The answers are Never, Occasionally, Sometimes, Often and Very Often. The problem is that there is also a BUT! Sonic will socialize with the kids he's known for years at school. He will eat lunch with them and be comfortable with them...HOWEVER, he will not even look a kid he doesn't know in the eyes, let along initiate any conversation. So what is the answer? At home he never tries to invite anybody over. He is a loner. He is not depressed...he prefers being alone. At school he interacts. This is but one of 2/3rds of the questions that hub and I could not really answer without explaining. However...
When scored, they are only scored by answer without an explanation. The questionnaires reminded me of Aspies...overly concrete with no gray area. It was frustrating and time consuming to fill them out. I do not believe they really tell an honest story and can't imagine how they can diagnose based on those tests. Now Sonic's teacher has to also fill out all of these questionnaires (poor guy). I'm sure he'll have the same struggle. In the end, because Sonic is so different at school, his answers will vary greatly from ours.
I wish they had a blood test for all these disorders. Honestly, I'll bet more people are misdiagnosed then correctly diagnosed. A long, tiring day for hub, me and Sonic. We had to travel quite far to see this recommended facility.