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<blockquote data-quote="susiestar" data-source="post: 311630" data-attributes="member: 1233"><p>I am sorry so much is piling up on your shoulders. Your sore shoulders. It hoovers.</p><p></p><p>I had to choose between not being able to think or say the right words, having them sit just out of reach of my memory but taking a medication that would help with the nerve pain or dealing with the pain and being able to ask the kids to do something or order coffee at a restaurant.</p><p></p><p>The day I stopped was the day I took 3 MINUTES to order a cup of coffee. I just could NOT get the word coffee to come out of my mouth. I finally ordered a container of brown liquid, not cold but that other thing. The one in the pot.</p><p></p><p>Tyler thought this was INCREDIBLY entertaining. Jess wasn't with us, it was just thank you and I. The lady at McD's thought I had been trying pot, not wanting something that came out of a pot!!!</p><p></p><p>I just couldn't take it. I couldn't even order a coke cause that wouldn't even come into my brain.</p><p></p><p>I hope they can get you on a medication that is affordable AND controls the pain. I am now trying to fit a dose of the pain medication I am on 5 times into a 24 hour day. It does make me somewhat goofy if I end up not sleeping. Since Jess is in asking for help several times a night - nights are REALLY bad for her - I don't sleep a whole lot at one time. </p><p></p><p>I am glad that mostly I can push her inhaler for her, rub her back, hold her while she shakes uncontrollably, and open her pill box and hold the water bottle or cup so she can take medications or drink.</p><p></p><p>It can get painful to do those things, but they are things she CAN'T do. I do have to limit the time I spend holding her because any rhythmic shaking makes me vomit. I hide the phenergan I take to combat that so she doesn't see me taking it.</p><p></p><p>Star is right. It may feel like whining to YOU but it ISN"T. It is just getting some support for your day.</p><p></p><p>Don't you HATE that every blinking person in the WORLD asks you how you are doing every time you see or talk to them? What am I supposed to say? Carpy and every movement makes me want to scream in pain or barf from it? </p><p></p><p>Here you are with women with tough kids, who understand the problems from the IEP meetings, with similar budget problems, and also with chronic and constant pain issues.</p><p></p><p>Crazymama talks about her hubby having to BEG for his pain medications. It is so wrong, but they probably decided he was an addict before he even checked in. That is where the healthcare system fails us. If you are in constant pain of course you are going to have drug seeking behaviors. Duh. You want to stop hurting. </p><p></p><p>But that is too logical for doctors to understand. </p><p></p><p>So you have all my understanding for your husband and his problems. It really stinks like a dead skunk laying on the side of a road in the heat of an Oklahoma summer. </p><p></p><p>My hugs to ALL of us today. Lots of gentle gentle ones!</p></blockquote><p></p>
[QUOTE="susiestar, post: 311630, member: 1233"] I am sorry so much is piling up on your shoulders. Your sore shoulders. It hoovers. I had to choose between not being able to think or say the right words, having them sit just out of reach of my memory but taking a medication that would help with the nerve pain or dealing with the pain and being able to ask the kids to do something or order coffee at a restaurant. The day I stopped was the day I took 3 MINUTES to order a cup of coffee. I just could NOT get the word coffee to come out of my mouth. I finally ordered a container of brown liquid, not cold but that other thing. The one in the pot. Tyler thought this was INCREDIBLY entertaining. Jess wasn't with us, it was just thank you and I. The lady at McD's thought I had been trying pot, not wanting something that came out of a pot!!! I just couldn't take it. I couldn't even order a coke cause that wouldn't even come into my brain. I hope they can get you on a medication that is affordable AND controls the pain. I am now trying to fit a dose of the pain medication I am on 5 times into a 24 hour day. It does make me somewhat goofy if I end up not sleeping. Since Jess is in asking for help several times a night - nights are REALLY bad for her - I don't sleep a whole lot at one time. I am glad that mostly I can push her inhaler for her, rub her back, hold her while she shakes uncontrollably, and open her pill box and hold the water bottle or cup so she can take medications or drink. It can get painful to do those things, but they are things she CAN'T do. I do have to limit the time I spend holding her because any rhythmic shaking makes me vomit. I hide the phenergan I take to combat that so she doesn't see me taking it. Star is right. It may feel like whining to YOU but it ISN"T. It is just getting some support for your day. Don't you HATE that every blinking person in the WORLD asks you how you are doing every time you see or talk to them? What am I supposed to say? Carpy and every movement makes me want to scream in pain or barf from it? Here you are with women with tough kids, who understand the problems from the IEP meetings, with similar budget problems, and also with chronic and constant pain issues. Crazymama talks about her hubby having to BEG for his pain medications. It is so wrong, but they probably decided he was an addict before he even checked in. That is where the healthcare system fails us. If you are in constant pain of course you are going to have drug seeking behaviors. Duh. You want to stop hurting. But that is too logical for doctors to understand. So you have all my understanding for your husband and his problems. It really stinks like a dead skunk laying on the side of a road in the heat of an Oklahoma summer. My hugs to ALL of us today. Lots of gentle gentle ones! [/QUOTE]
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