buddy
New Member
I think I am a little fried. Between the school issues and the behaviors.... and the worst is his health. Thank heaven we go to the neurologist tomorrow. She is the one who wanted him in the seizure unit. Every time I am going to post an update I have become stuck. The weekend went smoothly in the sense that nothing huge happened., He spent time lying down and told me he had a headache from time to time. Sunday we went to my dad's for dinner and all the cousins and two sisters were there. He asked me for Ritalain on the way there! He said he just can't stay awake. Of course I didn't give it to him, lol. He little by little started blurting little things. Then he fell asleep on my dad's couch. He woke when I went over to check and see if he could take his night time medications. He sat up and started threatening to throw the water cup and to spit at me because I was a f****** N**** B**** really how he strings every single swear word into one sentence adn says i t over and over.... it is impressive. My sister (nurse) was the first to say, he was so glassy eyed and now after the nap, it looks the same as when he went to the er. Yeah, I know. So i got him out to the car after he dumped water all over grandma and grandpa's floor. Swearing a storm at me...and adding the nonsense body part statements. Really so perseverative, kind of like delayed echolalia. He spit on me all the way home. I stayed totally cool on the outside. Told him since he can't be safe with the words he is choosing, I can't allow him to watch tv. He accepted it as it was all wearing down anyway. He chose to take a bath. That calms him. so that was good. Then he decided to go to bed. no arguments.
In the morning, before medications kicked in... was really rigid and mean. (he was worried remember, his school schedule was changed and he didn't get his bus). I finally had to threaten a huge consequence... as usual, that stops the behavior for the minute you need it stopped, but it does nothing in the long run for him. Finally he did calm down and so got to go to school for his whole two hours.
At school the nurse called me(I ws in the library) and she said he needed tylenol for a headache.... HOLDING MY BREATH.....
the pattern again.... feels fake, may or may not fall, very crabby and blurty, says he is dizzy sometimes, then falls deeply asleep and or gets very agitated, perseverative. But this time, he seemed like just the headache part (we miss the little simple ones, and he just fesses up when he gets the headache medication) But nurse just gave tylenol then at 220 teacher said he asked her to help him move his chair because he couldn't stand up becasue he was too shakey and tired and would she pease help? He did all of his work. (alone in the little room) and finally had to lie down but the nurse did come and check his BiPolar (BP) which was fine. Teacher asked to check in what zone he was in...he said, "I am in green now but I really need you to not talk to me so I can rest and not get upset" WOW
He is out with his Integrated Listening Systems (ILS) worker now and I haven't heard of anything yet.
The administration at school left me alone and did not bug me to meet in private! the teacher had called and wanted me to sign a significant change form for the 4 days he had altered days. I said, well I have to check, I think you are trying to not have those days count as part of 10 days of suspension. I was totally honest. I told her I had to check with my advocate.
So, when I was there, teh teacher and the behavior teacher came to me to say they felt that they had upset me and hadn't meant to. I said they hadn't really upset me but the psychologist and the administration did. I said, I have honestly lost trust in them and I am going to have an advocate. they said, that was great and can PACER come on Monday to an IEP meeting??? well I then told them it was the MN disability law center becasue pacer told me they can't come until there is a violation of the IEP. they said ok. (dont think they realize) The teacher gave me a hug and said she is just worried about him. I know but...... they want to re-write the bip on Monday and add a crisis plan. that is fine UNLESS the administration wants to add that he is suspended for things etc. That is why I want the advocate there. She has told me to call every time they communicate with me. SO I have. She is really angry with this district so hope she does not put all of them off, but I have no doubt that we will get some of the things we want. Our psychologist also agreed to come on MON. so he will be most important.
I reminded them of the medication error and that is why they saw such a huge difference in his behavior. They know, but want to add a crisis plan anyway. I said, I didn't think we should change the bip until we did the independednt fba on the behaviors of concern. the sp. ed . coordinator will have to be there for that decision.
I asked if they are willing to do the light sound auditory entrainment, they are so we will discuss that.
I asked about the FM system, called the audiologist and the behavior team person said they had it in their full schools in texas and she thinks it is a great idea. the sp ed teacher was truly excited when I told her about the research I had and the results. she wants six of them. they think we should ask the audiologist to come soon. They MUST consider assistive technology so.....
I am hoping it goes smoothly but my dad always says I am way too trusting.
I feel like I can't really compose things well in my brain.
here is my schedule this week now...
Q goes to school at 9:30 to 11:30 tomorrow. I pick up and bring to doctor at 12 then I am not going back to school...too hard on him. I got his Integrated Listening Systems (ILS) worker to come for a make up day and he is coming at 2 so Q will love that. I will have him meet me in a northern suburb to meet TeDo because they are coming to the area for an appointment. YIPEE!!! I think timer lady is coming too! anyone who wants to come is welcome...just pm us.... I think we are eating at Old country Buffet, smile.
Then Wed, he gets to go at 11 and will be there all day. (yeah, we will see)
thurs and friday, thanksgiving, please let it go better than at my dad's
friday Integrated Listening Systems (ILS) worker takes him so I get a break. I will write his new waiver plan during that time.
Meet the phn on monday to write the new plan.
Have to finish intake for Occupational Therapist (OT) and Speech Language Pathologist (SLP) (Occupational Therapist (OT) sent adolescent/adult forms, lol, me: Quin, do you prefer to add spice to your food? Q: shut up mom, I dont like those questions... ME: dialing the phone.... um miss therapist, can we please get the child version for me to fill out??? It is what was done exactly at teh hospital just a few weeks ago, can just give them the results.
Has Speech Language Pathologist (SLP) evaluation on the 29th and psychiatrist appointment that day too. he will nto be happy. last time had to get a psychiatric tech to watch him to keep him from hitting me during the appointment . He was so stressed about the appointment then after, perfectly fine. He has such a low boiling point.
Poor kid, thanks for letting me ramble...
In the morning, before medications kicked in... was really rigid and mean. (he was worried remember, his school schedule was changed and he didn't get his bus). I finally had to threaten a huge consequence... as usual, that stops the behavior for the minute you need it stopped, but it does nothing in the long run for him. Finally he did calm down and so got to go to school for his whole two hours.
At school the nurse called me(I ws in the library) and she said he needed tylenol for a headache.... HOLDING MY BREATH.....
the pattern again.... feels fake, may or may not fall, very crabby and blurty, says he is dizzy sometimes, then falls deeply asleep and or gets very agitated, perseverative. But this time, he seemed like just the headache part (we miss the little simple ones, and he just fesses up when he gets the headache medication) But nurse just gave tylenol then at 220 teacher said he asked her to help him move his chair because he couldn't stand up becasue he was too shakey and tired and would she pease help? He did all of his work. (alone in the little room) and finally had to lie down but the nurse did come and check his BiPolar (BP) which was fine. Teacher asked to check in what zone he was in...he said, "I am in green now but I really need you to not talk to me so I can rest and not get upset" WOW
He is out with his Integrated Listening Systems (ILS) worker now and I haven't heard of anything yet.
The administration at school left me alone and did not bug me to meet in private! the teacher had called and wanted me to sign a significant change form for the 4 days he had altered days. I said, well I have to check, I think you are trying to not have those days count as part of 10 days of suspension. I was totally honest. I told her I had to check with my advocate.
So, when I was there, teh teacher and the behavior teacher came to me to say they felt that they had upset me and hadn't meant to. I said they hadn't really upset me but the psychologist and the administration did. I said, I have honestly lost trust in them and I am going to have an advocate. they said, that was great and can PACER come on Monday to an IEP meeting??? well I then told them it was the MN disability law center becasue pacer told me they can't come until there is a violation of the IEP. they said ok. (dont think they realize) The teacher gave me a hug and said she is just worried about him. I know but...... they want to re-write the bip on Monday and add a crisis plan. that is fine UNLESS the administration wants to add that he is suspended for things etc. That is why I want the advocate there. She has told me to call every time they communicate with me. SO I have. She is really angry with this district so hope she does not put all of them off, but I have no doubt that we will get some of the things we want. Our psychologist also agreed to come on MON. so he will be most important.
I reminded them of the medication error and that is why they saw such a huge difference in his behavior. They know, but want to add a crisis plan anyway. I said, I didn't think we should change the bip until we did the independednt fba on the behaviors of concern. the sp. ed . coordinator will have to be there for that decision.
I asked if they are willing to do the light sound auditory entrainment, they are so we will discuss that.
I asked about the FM system, called the audiologist and the behavior team person said they had it in their full schools in texas and she thinks it is a great idea. the sp ed teacher was truly excited when I told her about the research I had and the results. she wants six of them. they think we should ask the audiologist to come soon. They MUST consider assistive technology so.....
I am hoping it goes smoothly but my dad always says I am way too trusting.
I feel like I can't really compose things well in my brain.
here is my schedule this week now...
Q goes to school at 9:30 to 11:30 tomorrow. I pick up and bring to doctor at 12 then I am not going back to school...too hard on him. I got his Integrated Listening Systems (ILS) worker to come for a make up day and he is coming at 2 so Q will love that. I will have him meet me in a northern suburb to meet TeDo because they are coming to the area for an appointment. YIPEE!!! I think timer lady is coming too! anyone who wants to come is welcome...just pm us.... I think we are eating at Old country Buffet, smile.
Then Wed, he gets to go at 11 and will be there all day. (yeah, we will see)
thurs and friday, thanksgiving, please let it go better than at my dad's
friday Integrated Listening Systems (ILS) worker takes him so I get a break. I will write his new waiver plan during that time.
Meet the phn on monday to write the new plan.
Have to finish intake for Occupational Therapist (OT) and Speech Language Pathologist (SLP) (Occupational Therapist (OT) sent adolescent/adult forms, lol, me: Quin, do you prefer to add spice to your food? Q: shut up mom, I dont like those questions... ME: dialing the phone.... um miss therapist, can we please get the child version for me to fill out??? It is what was done exactly at teh hospital just a few weeks ago, can just give them the results.
Has Speech Language Pathologist (SLP) evaluation on the 29th and psychiatrist appointment that day too. he will nto be happy. last time had to get a psychiatric tech to watch him to keep him from hitting me during the appointment . He was so stressed about the appointment then after, perfectly fine. He has such a low boiling point.
Poor kid, thanks for letting me ramble...