timer lady
Queen of Hearts
and came home with the next phase of treatment plan.
Mayo doctor feels the encephalopathy (from the shingles) has improved as much as it will. (It's generally the first 7 weeks that you see the most significant improvement.)
The Cushing's can take up to 3 years to "cure". My next taper of prednisone (I'm at 10 mg) is down 1 mg every 2 weeks & then I stop at 5 mg for 3 months. After that, (depending how I tolerate this one), will be 1/2 mg every 3 months until I can discontinue the stuff. There is a concern that my adrenal gland will not kick in & do it's job because of the long term prednisone. After the d/c of the medication there may be other issues to deal with....I asked Mayo doctor to wait on that information. I see him again in 3 months.
It seems that the encephalopathy & Cushing's are the final diagnosis's & I'm okay with that. Now we need a plan to get on with life.
Mayo doctor would like to see more PT & Occupational Therapist (OT) ordered. A dietician was in yesterday to help set up a "prednisone" diet. Who knew there was a prednisone diet? It includes high amounts of protein & low sodium.
Mayo doctor told me I'm going to being asked to be the "poster woman" for the chicken pox & shingles vaccines! I'm going to be a star, ladies. :queen:
Who knew that the varicella zoster herpes virus (HHV3) could get so very debilitating & deadly?
Mayo doctor feels the encephalopathy (from the shingles) has improved as much as it will. (It's generally the first 7 weeks that you see the most significant improvement.)
The Cushing's can take up to 3 years to "cure". My next taper of prednisone (I'm at 10 mg) is down 1 mg every 2 weeks & then I stop at 5 mg for 3 months. After that, (depending how I tolerate this one), will be 1/2 mg every 3 months until I can discontinue the stuff. There is a concern that my adrenal gland will not kick in & do it's job because of the long term prednisone. After the d/c of the medication there may be other issues to deal with....I asked Mayo doctor to wait on that information. I see him again in 3 months.
It seems that the encephalopathy & Cushing's are the final diagnosis's & I'm okay with that. Now we need a plan to get on with life.
Mayo doctor would like to see more PT & Occupational Therapist (OT) ordered. A dietician was in yesterday to help set up a "prednisone" diet. Who knew there was a prednisone diet? It includes high amounts of protein & low sodium.
Mayo doctor told me I'm going to being asked to be the "poster woman" for the chicken pox & shingles vaccines! I'm going to be a star, ladies. :queen:
Who knew that the varicella zoster herpes virus (HHV3) could get so very debilitating & deadly?