We see the top neurologist for kids in the state, possibly even the region. He is excellent. I have real beefs with the staff. They charge $25 per PAGE for any forms to be filled out. Just having them fax jessie's school to say she really has migraines and they do last a week or more at times cost me over $100. They even billed me for phone calls. The staff does not even take all phone calls to the doctor. If they think you are being a PITA they just erase them. They admitted it to us. Right now Jessie really needs this guy. But he is trying to get out of a contract with our insurance co. If we go on medicaid he will help us. He is still under contract to our ins co so he has told his staff to refuse to schedule anyone with it until they have different insurance. He will not or can not even let us pay cash for the full cost of his services. Not even if we pay up front. I am so angry today. we did the video EEG. I called the pediatrician's office that ordered it. She is in excruciating pain. Between the shaking episodes the muscles on her back,legs, arms, everywhere - even her scalp are just all knotted up. They gave ehr a few pain pills and muscle relaxers. They are not helping much. At this point a new patient appointment with another child and adolescent neuro will be a 4 month wait. It will be 4-6 weeks before she can get medicaid. How do I get her help NOW? I did tell the nurse that the pediatrician needed to call the neuro to get some help for us. I was insistent. It will be tomorrow before I get any help. We did NOT need this insurance squabble on top of everything!