I am new here & desperately looking for help. My difficult child is 5 (Autism Spectrum Disorders (ASD)/asperger's, ADHD) and also has a congenital heart defect. He had 2 surgeries as a baby and we just found out this week he needs another open heart surgery. He is extremely anxious as it is and has a lot of trouble with sensory issues and is very rigid/OCDish about his daily life. His sleep is horrid. We just started a new therapist and are considering medications for the anxiety. He has some medication limitations because of the cardiac condition. He just had an mri done under general anasthetic and did not react well, to put it mildly. he had a total freakout meltdown because of the IV and the tape and waking up in a strange place. Has anyone been through this? Any recommendations for helping him through it, and helping the cardiac unit understand what he needs to get through it? S. mom of 5 y.o. difficult child (Autism Spectrum Disorders (ASD), heart defect) AKA and fairly challenging hyper/explosive 2 y.o. girl child AKA 'the tornado'