tired Cheryl
New Member
Hi!
Well, we have had a complete week with no MAJOR meltdowns! First time in almost four years (yes difficult child has been melting down since birth) that this has happened.
I must relent that the Risperdal is working in addition to behavior therapy, and not being set up to fail in school.
He is taking 0.25 am and pm. The neurologist does not believe that the arm twitching in his sleep when we first went up to 0.25 twice per day was related to Ripserdal. She thinks that he is having seizures in his sleep. His last seizure that I actually observed was in JUne and he was conscious but all of his limbs were moving. He screamed, "Mommy, I cannot get out of my bed" But this occured in early morning when I was awake and could witness it.
But last week when he complained about his arm twitching it was at 2am and after the fact. He also had two nights in a row of wetting the bed. Neuro think that was seizure related too.
So, I am taking him on Monday for anticonvulsant levels, cbc, etc. That should be interesting. Last time husband took him and other times he was in the hospital.
He is not sedate at all, very hyper but in a happy funny way and I'll gladly take that over screaming, biting, hitting and spitting all day!
I am seeing a side to my son that I have not been allowed to experience since his birth and it is so wonderful. I finally have hope and it also validates that he really does need medications. I struggled with this for so long!
I hope that this helps those of you that were like me and terrified of medications. Of course I realize that there may be side-effects that we have to deal with or that the drugs may stop working but they have given me one awesome week and I am greatful for that!
Cheryl
Well, we have had a complete week with no MAJOR meltdowns! First time in almost four years (yes difficult child has been melting down since birth) that this has happened.
I must relent that the Risperdal is working in addition to behavior therapy, and not being set up to fail in school.
He is taking 0.25 am and pm. The neurologist does not believe that the arm twitching in his sleep when we first went up to 0.25 twice per day was related to Ripserdal. She thinks that he is having seizures in his sleep. His last seizure that I actually observed was in JUne and he was conscious but all of his limbs were moving. He screamed, "Mommy, I cannot get out of my bed" But this occured in early morning when I was awake and could witness it.
But last week when he complained about his arm twitching it was at 2am and after the fact. He also had two nights in a row of wetting the bed. Neuro think that was seizure related too.
So, I am taking him on Monday for anticonvulsant levels, cbc, etc. That should be interesting. Last time husband took him and other times he was in the hospital.
He is not sedate at all, very hyper but in a happy funny way and I'll gladly take that over screaming, biting, hitting and spitting all day!
I am seeing a side to my son that I have not been allowed to experience since his birth and it is so wonderful. I finally have hope and it also validates that he really does need medications. I struggled with this for so long!
I hope that this helps those of you that were like me and terrified of medications. Of course I realize that there may be side-effects that we have to deal with or that the drugs may stop working but they have given me one awesome week and I am greatful for that!
Cheryl