Hello everyone! I hope that you all will somehow get this message because it seems like no one has logged on for awhile to post anything but I can really use some advice.
My 10 year old daughter has just been diagnosed with chondrolysis of the left hip. We live in Canada and had an appointment at Sick Kids yesterday where we got this diagnosis. It's been 3 months of trying to figure out what is wrong, with a first diagnosis of SCFE but then finding out that's not it after all. I'm sad and frustrated at the same time because we've been told it's a diagnosis of ICH because of her low level of cartilage but we were also told it's not an easy diagnosis and other things have to be excluded first. We're only managing her pain with crutches and Advil. Physio starts next week. And we go back to see the specialist in 3 months. This doesn't seem like a treatment plan to me. What else is there? What should I be doing to help her? Did you take your kids out of school because of the pain? Did you reduce their hours at school? Will she get better??? Do I need to get a second opinion?
My 10 year old daughter has just been diagnosed with chondrolysis of the left hip. We live in Canada and had an appointment at Sick Kids yesterday where we got this diagnosis. It's been 3 months of trying to figure out what is wrong, with a first diagnosis of SCFE but then finding out that's not it after all. I'm sad and frustrated at the same time because we've been told it's a diagnosis of ICH because of her low level of cartilage but we were also told it's not an easy diagnosis and other things have to be excluded first. We're only managing her pain with crutches and Advil. Physio starts next week. And we go back to see the specialist in 3 months. This doesn't seem like a treatment plan to me. What else is there? What should I be doing to help her? Did you take your kids out of school because of the pain? Did you reduce their hours at school? Will she get better??? Do I need to get a second opinion?