Resources in Texas

Discussion in 'General Parenting Archives' started by Stella Johnson, Jan 29, 2007.

  1. Stella Johnson

    Stella Johnson Active Member

    I was going through old emails I had saved from when difficult child was in Kindergarten and 1st grade and she was kicked out of every day care in the area. I searched high and low sent emails to every program I could find. Called every local college, high school... you name it. I decided to compile a list of services that I found.

    I also found that I am extremely frustrated about something else. I found so many federally funded "advocates" for children with disabilties. They advocate but do nothing else. Why can't we put this "advocacy" dollars into actual programs? Do we really need all these federally funded groups who do nothing but talk aka "advocate"?

    so here is my list...

    Achievement Center of Texas

    The Achievement Center of Texas is a licensed non-profit day care and day habilitation center for children and adults with special needs. Every effort is made to offer families their choices in services and to support those choices wherever possible. In providing a wide range of services in the least restrictive environment, students at the Achievement Center can grow and develop physically, intellectually, emotionally and socially working toward greater independance and more satisfying way of life.
    This one actually looks helpful.

    The FFCMH, a national family-run organization serves to:
    • Provide advocacy at the national level for the rights of children and youth with emotional, behavioral and mental health challenges and their families
    • Provide leadership and technical assistance to a nation-wide network of family run organizations
    • Collaborate with family run and other child serving organizations to transform mental health care in America
    I contacted these people. Never figured out quite what they do. Apparently they had no real programs but use federal money to “advocate”. They do want donations however.
    Another federally funded program that “advocates” and takes federal money but has no real services. The site mentioned above that also has no real services.
    I contacted them years ago about doing a story for awareness purposes about our difficult child’s.
    I received one response that they would look into it. I never heard from them again.

    Texas Infant and Toddler Intervention Program
    This one is only for infants and toddlers and ultimately refer you to your school district.
    Advocates on the National level. No services provided.
    I spoke with several of their directors. They said they had never thought much about the need for special needs day care. They said they mostly deal with Adults with disabilities

    I contacted all of my local college psychology departments. I was hoping I could find a psychiatric student that might be interested in caring for difficult child after school. I never received a response from any of them.

    Texas Department of Health and Human Services
    I received a response that simply said she was referring me to State Rehab Services.
    No response from them.

    NAMI Texas
    More advocacy but never found a real program that actually helps mentally ill children.

    Therapeutic Day School
    They are not in my area but this may be helpful for others.

    Texas MHMR
    Useless if you have insurance but may have programs for others. No day care options at all. I talked to multiple divisions within MHMR.

    Child Care Group
    No real solutions for special needs but this does have a long list of child care providers
    Center for Parent Information and Resources
    They referred me to “The Parent Training and Information Center”

    Someone along the way sent a list of California State Resources. I am in Texas so they don’t work for me. I know others on the board are in that area so I thought I would list them.
    Parents Helping Parents -- San Francisco
    594 Monterey Boulevard San Francisco, CA 94127-2416
    (415) 841-8820

    Support for Families of Children with Disabilities
    2601 Mission Street, Suite 606 San Francisco, CA 94110-3111
    (415) 282-7494

    United Advocates for Children of California
    1401 El Camino Avenue, Suite 340 Sacramento, CA 95815-2700
    (916) 643-1530
  2. Stella Johnson

    Stella Johnson Active Member

    I forgot to add, I also contacted CPS. At the time I was in the middle of one of those wonderful investigations. They were no help with the day care issue either. Referred me to one of the child care websites above. I have heard of several other ppl on the board getting help from them though.

  3. dreamer

    dreamer New Member

    Lots of times "advocates" are volunteers and do not get any money from anyone for doing what they do. sometimes they are simply other laypeople with no "proper" credentials or certifications and could not bill if they wanted to.
    I "advocated" for veterans and I advocated for spec needs kids to our county level mental health board and to our state level and I testified/advocated at Pres commission for mental health and it was ALL on my own dime in my own time. as you know childcare is hard to come by, and so is care for a mentally/physically disabled adult.....and many places were not handicapped accessible for me and my scooter. and in between caring for my kids and working my own jobs etc, it was hard.
    I also worked with our county SASS people providinh resource info to other parents, gathering names, addresses and phone numbers of all kinds of places where help might be found, gathered when I was searching for similar things, but while I shared the info, I had nothng to do with whether or not anyone met the critieria to benefit from those resources nor did I have anything to do with the reliability of those places to return calls etc.

    Often it was a thankless job and it cost me out of my already thin pocket to continue to try to help.
    Many programs also are not worth the paper they are printed on. Some are simply a way of making things LOOK good.....
    Advocating to change policies and laws IS a helpful way to help people, tho. It is how change takes place and hopefully eventually does help those who need the help.
  4. dreamer

    dreamer New Member

    also, many times resources can have a high turnover of availability. Staffing shortages can make some resources useless. Funding issues can, too. ANd funding for these type services is often a yearly thng and can change dramatically year to year.
  5. timer lady

    timer lady Queen of Hearts


    You have to consider that each state has different criteria for access to services. Some states are more responsive when it comes to children with special needs - others not so much.

    Additionally, I have found that you need to stage a "sit in" at someone's office to get anyone to listen.

    There are horror stories (dreamer's comes to mind) when it comes to in home services; I've been very lucky in regards to the services rec'd here in the tweedle household. MN has very high licensing criteria for in home care providers. Additionally, these providers are scrutinized & audited on an annual basis. Our CMs check in quarterly to make sure that all services are being provided in a professional manner. If there are problems in between the service providers have responded to my concerns or they were at risk to losing their licensing or contract with the state.

    There are some successes for resources for services. Remember, the squeaky wheel yada, yada, yada......
  6. Stella Johnson

    Stella Johnson Active Member

    You are right. It varies from state to state. You have had incredible luck with all your services.
    I went through all kinds of hoops and at one time wanted to help start a therapeutic school. In the end, I just didn't have the time and energy.

  7. timer lady

    timer lady Queen of Hearts


    I'm lucky that I live in a state that offers this level of services - I worked my :censored2: off to get them. I still work to keep them. It's what is needed for my children.

    Have you applied for SSI or to have a medical determination for your difficult child? That took a good 10 months for us yet eventually brought in the CADI (community alternative for disabled individuals) waiver of services.

    SSI is another story yet we are being encouraged to get that in motion now before the tweedles hit 18.

    I'm sorry for your struggle in finding help for difficult child. It shouldn't be.
  8. dreamer

    dreamer New Member

    something else that came to my mind while I was getting easy child from school just now----

    sometimes an advocate middle person who guides someone to services is not hel accountable becuz they are not getting paid so there is no "contract" to deliver. Very often the advocates are volunteer middlemen just rtying to help others in similar situations they have found themself in in the past.

    as for services, in the early 90s here we had what our county claimed was The Most Services and The Best for mentally disadvantaged people----and claimed our programs were the pilot programs for many other counties nationwide.
    at the time that might have been true. ALas theory does not always match up with practical application and yes funding caused the majority of our resources to dry did shortage of staffing.

    as for what credentails are required in MN, I know several caregivers doing in home services in southwest MN and also hired some for my elderly aunt there.
    Their pay is so low, it is often not a job anyone chooses, and no, the people staffing respite and PCA work in the homes are not always certified in anything. Not all of them even have HS diplomas.
    These are not desireable jobs, due to the hours and the pay and the job duties. Most places have staffing shortages in such jobs. (in home respite and in home caregiving)
  9. dreamer

    dreamer New Member

    there is another issue that has had something to do with available resurces. Sometimes some agencies do not want to provide funds for long term or ongoing chronic problems. Those kid of problems tend to not look good on the stats that get sent back to the funding sources. Benefactors like success stories. they like to get that good feeling that comes when you see a positive and remarkable good ending.....and so often with the ongoing difficulties encountered with children with ever canging diagnosis'es and endless medication changes and ongoing difficulties these do not present quite as the success stories they are seeking. They prefer to hold back funding from chronic problems and focus more dolllars spent on situtions with a better chance of obvious visual and statistical improvement. Things that can have a quicker "fix" with a minimum of outlay. The biggest competition in our area for the benefactors donations has been substance abuse and teen pregnanacy. Things like Early Onset Bi-Polar (EOBP) and Pervasive Developmental Disorder (PDD) are more complicated and use more of the rationed dollars.
    ANd often states are more willing to fund for foster kids and special needs adoption kids...they pull more sympathy from the general public and are seen as a better investment. A lot of places still do figure bio families can take care of their bio kids on their own. and if fosters and those being adopted are not placed the dollars would be spent on them anyway to begin with.....
    and in some areas people are told to give up their kids to get services.
    Even if it is not always out there for people to know it, some places will more quickly provide help to fosters and adopteds.
  10. tiredmommy

    tiredmommy Site Moderator

    Dreamer, I have to respectfully disagree with this statement, at least with my experience. There may be some exceptions, such as when a savvy adoptive parent negotiates for needed services to be provided at state expense prior to finalizing a special-needs adoption. I can assure you that the organizations I have volunteered for cannot discriminate between adopted, fostered or biological children. To do so would be immoral, illegal, and seem unseemly to potential benefactors.
  11. dreamer

    dreamer New Member

    Move to IL and find out, YES it IS a problem that for MAY sercices in many situations parents ARE pressured and told unless they give up custody to the state and place their kids into foster care they will NOT get services they request.
    I am not making it up, and I am not trying to start a foster-adoptee-bio war......
    there are also parents on this very site who also were pressured to outplace their kids etc to get their children services.
    Not only are parents told to place kids in foster homes but there ar4e also many stories here of parents who wound up having to get their kids into the juvenile justice system to get services as well.
  12. DammitJanet

    DammitJanet Well-Known Member Staff Member

    I didnt have as easy access to services as Timer did but we did ok. Mainly it was because Cory had medicaid. That was the ticket to opening doors.

    I never was asked to place my son in the states custody. He was in many programs and placements and therapies over the years and I retained full parental rights and custody the whole time. Mental health and medicaid picked up the tab for his treatments.

    Is he some stat on some paperwork out there someplace? Probably. I have no idea which little boxes they would place him in. I know our socioeconomic background, our races, health conditions, etc. I doubt he helped or hindered their scores too much one way or the other.
  13. Steely

    Steely Active Member

    Wow, lots of great stuff here! Thanks! Just curious did you have any success with the Achievement Ctr of Texas?
  14. timer lady

    timer lady Queen of Hearts

    Just wanted to add in another thought for those of you searching for help.

    The tweedles didn't qualify on diagnosis, foster/adoptive status or economic (though that comes into play) background.

    My children receive services based on their GAF score. kt's GAF is currently 34 while wm is functioning at a 30.

    In this state to receive services of any type, no matter who they are, the GAF must be below 50.
  15. Stella Johnson

    Stella Johnson Active Member

    My frustration with all of the "Advocate" programs was that they couldn't tell me anything they had accomplished to help our kids. Shouldn't they at least have some resource to point me toward since they were supposed to be advocating for them?

    I tried to apply for SSI a few years ago. Before I even got past the phone conversation to get the paperwork I was told that I make too much money.

    I can see what you are saying about getting actual numbers faster with teen mothers etc.

    I tried the medicaid route. Since she already had insurance, they refused her. I tried to get CHIPS but they wouldn't take her for the same reason. She would have to go without ins for 90 days before they would pick up the tab. Her medications would be over 1500 a month so there's no way I could do it.

    No, I didn't have any luck with them for what I was looking for at the time but they did seem helpful in other services.

    I should also mention I did run across a couple of programs locally in Texas that provided respite money. Those dried up and went away a few years ago. Didn't last long.

  16. dreamer

    dreamer New Member

    In an ideal world, yes.......

    GAF scores-----well, we did get tons of services for awhile, gosh we were over serviced, in truth for awhile....and GAF never was even discussed till years later (by the way my dtrs GAF has been as low as 10 and as high as 35 but never more than 35. Same with my husband) BUT it never helped us get any services.
  17. tiredmommy

    tiredmommy Site Moderator

    I'm adding TimerLady's online respite finder before I lock and archive: